Well. I've survived my first year with the CI. I can't quite believe it. When I went in for my one-year follow-up appointments yesterday, my surgeon walked into the room and marveled, looking at my chart, that time had passed so quickly. Sitting in that chair where I had sat, both when anxiously considering getting a CI and when anxiously wondering what would happen when it came on, I had to agree wholeheartedly.
So, one-year remapping with my audiologist: check. Speech recognition had improved since last time, and I felt more confidence in what I was hearing. Progress. At this point, the goal isn't necessarily giving me more volume - I've stabilized at roughly the point I was at six months ago - but optimizing the balance and input of the BTE to the electrode array. We stayed with similar settings to those I already had (same IDR and similar levels of stimulation), but already the changes have left me startled by the sound quality in my environment. Sounds that I'd thought were familiar (myself typing, myself swallowing, chairs scraping across the floor) seem to have shifted. They're different, more prominent, more raw. They feel new all over again. I'm wondering if this process is one that will never end - shaking things up, then stabilizing, then shaking them up again.
Perhaps so, because the learning curve continues. It might not rub my nerves as raw as it did last summer, but neuroplasticity doesn't come without breaking old ways and old molds over and over. If anything, that's what the last year has taught me, irrespective of hearing. I've experienced the world in new and astonishing ways, ways that had previously lay outside my realm of imagination, and I've discovered a flexibility and a strength and a curiosity that I didn't know I had. It's been quite a ride from that first day one year ago, that seemed so chaotic and that I remember so clearly. I'd like to reflect on it more fully at some point. But for now - a thumbs-up for hearing!
Wednesday, June 29, 2011
Monday, June 27, 2011
BEA Social
Yesterday I did something that's been on my agenda for a while: attended a local social gathering for Advanced Bionics' Bionic Ear Association (BEA), which seeks to connect and provide information to a network of CI users and candidates. In my area, these meetings take place every three months or so, and now the beginning of summer (read: a time in which I'm no longer tied down with being a full-time student! hooray!) has provided me with the perfect opportunity to branch out and meet other people with CIs.
In a way, what happened when I walked into that room wasn't entirely unexpected. I was the youngest person at the gathering by far (several decades at least), and one of the only ones who was prelingually, congenitally deaf. I was the only one who had gotten her CI after twenty years of deafness. Most of the other BEA attendees were fifty or older, people who had lost their hearing gradually or suddenly over the course of their lives. As such, of course, their CI stories were far more successful than mine. Having an established auditory memory, having prior experience with hearing, having been assimilated into the hearing world (rather than feeling like they had always hovered about its boundaries, as I have felt) - all of these factors had made a world of difference for their lives post-implantation. I had a bit of a sinking feeling as one older gentleman, looking and sounding and behaving almost entirely hearing save for the bilateral magnets on the side of his head, told me about using the phone perfectly by the third day after activation. The third day? The third day after my activation, I was about ready to put a bullet through my head! It was a rocky uphill trek through territory I had never before known or experienced. It was not, by any means, a gratifying return to skills long since lost. The gratification has only emerged slowly.
Still, there was a small - very small - subset of other early- or congenitally-deafened people at this BEA gathering, including one who currently wears hearing aids but was considering a CI. These people signed (whereas the later-deafened people did not), and I sat with them and chatted for a bit. Of course, as often inevitably seems to happen in groups like this, the conversation turned to the question of identity. Groan. One woman (who, I could tell immediately, was strongly culturally Deaf) turned to me and asked me which group I identify with, post-CI. Other people had said, "Oh, definitely still Deaf" or "Hearing!", but I sat frozen for a second before tossing up my hands and signing, "I don't know." I certainly did not consider myself Deaf a year ago, and do even less so now. But I'm still far from identifying with hearing people sometimes. I'm just happy with resisting categorizations, however much other people seem to like them. They make introductions easier, but otherwise they don't come to much good. Still, I was a bit haunted by the recurrence of that question, one year later (or twenty-one, depending on how you look at it). Who cares, I suppose.
All in all, meeting and talking to such people was a breath of fresh air in the sense of sharing common hearing experiences, but it also emphasized to me how very different each individual's journey with the CI can be. Personal history and intrinsic factors figure into the equation more than some people think. But chin up. I survived those chaotic first months. I am not hearing, nor will I ever be, but I'm doing so much better than I was one year ago. Yes, a cloud of doubt about my ultimate future limitations still hovers over my head - a cloud that seemed to loom a little bit closer after yesterday. But comparison to others is never the way to go for anything. This is my journey, and I'm going to make it on my terms and to the best of my ability.
Enough internally-conflicted talk. My one-year remapping is tomorrow, and that's a cause for celebration. From electric shocks to hearing and learning and experiencing and (!!) understanding, I think I'm going to walk around with a grin on my face all day.
In a way, what happened when I walked into that room wasn't entirely unexpected. I was the youngest person at the gathering by far (several decades at least), and one of the only ones who was prelingually, congenitally deaf. I was the only one who had gotten her CI after twenty years of deafness. Most of the other BEA attendees were fifty or older, people who had lost their hearing gradually or suddenly over the course of their lives. As such, of course, their CI stories were far more successful than mine. Having an established auditory memory, having prior experience with hearing, having been assimilated into the hearing world (rather than feeling like they had always hovered about its boundaries, as I have felt) - all of these factors had made a world of difference for their lives post-implantation. I had a bit of a sinking feeling as one older gentleman, looking and sounding and behaving almost entirely hearing save for the bilateral magnets on the side of his head, told me about using the phone perfectly by the third day after activation. The third day? The third day after my activation, I was about ready to put a bullet through my head! It was a rocky uphill trek through territory I had never before known or experienced. It was not, by any means, a gratifying return to skills long since lost. The gratification has only emerged slowly.
Still, there was a small - very small - subset of other early- or congenitally-deafened people at this BEA gathering, including one who currently wears hearing aids but was considering a CI. These people signed (whereas the later-deafened people did not), and I sat with them and chatted for a bit. Of course, as often inevitably seems to happen in groups like this, the conversation turned to the question of identity. Groan. One woman (who, I could tell immediately, was strongly culturally Deaf) turned to me and asked me which group I identify with, post-CI. Other people had said, "Oh, definitely still Deaf" or "Hearing!", but I sat frozen for a second before tossing up my hands and signing, "I don't know." I certainly did not consider myself Deaf a year ago, and do even less so now. But I'm still far from identifying with hearing people sometimes. I'm just happy with resisting categorizations, however much other people seem to like them. They make introductions easier, but otherwise they don't come to much good. Still, I was a bit haunted by the recurrence of that question, one year later (or twenty-one, depending on how you look at it). Who cares, I suppose.
All in all, meeting and talking to such people was a breath of fresh air in the sense of sharing common hearing experiences, but it also emphasized to me how very different each individual's journey with the CI can be. Personal history and intrinsic factors figure into the equation more than some people think. But chin up. I survived those chaotic first months. I am not hearing, nor will I ever be, but I'm doing so much better than I was one year ago. Yes, a cloud of doubt about my ultimate future limitations still hovers over my head - a cloud that seemed to loom a little bit closer after yesterday. But comparison to others is never the way to go for anything. This is my journey, and I'm going to make it on my terms and to the best of my ability.
Enough internally-conflicted talk. My one-year remapping is tomorrow, and that's a cause for celebration. From electric shocks to hearing and learning and experiencing and (!!) understanding, I think I'm going to walk around with a grin on my face all day.
Wednesday, June 8, 2011
One Year of Bionic
On this same Wednesday one year ago, I went through my last pre-op appointments, then sat and waited for the CI surgery that would take place the following morning. Killed time and waited. Went to dinner and waited. Made some nervous conversation. Went to bed and lay awake and waited. Couldn't sleep because of my mixed excitement and anxiety and dread. What was I getting myself into?
Today, after meeting with my auditory therapist, I walked out grinning. My one-year CI remapping will be in a few weeks, and although I've reached the point where I'm continually cranking the volume up on my processor, itching once again for more sound and more range, what I have to work with is pretty remarkable.
First exercise: open set of random sentences that I wasn't allowed to look at or study beforehand. I got half of them completely correct on the first try, and got large chunks of the rest (with some missed words or slight flubs on phonemes). My score: 75%, give or take, maybe even 80%.
Second exercise: minimal-pair drills with monosyllabic words, probably one of the hardest tasks for me since I'm literally listening for a difference of a single phoneme, while listening without any context. My score: 90%. Ninety freaking percent.
And the best part: while I felt confident enough throughout, I had one of those head-spinning moments afterwards when I saw the numbers. Why, hadn't I been guessing most of the time? Doesn't seem like it. My conscious mind keeps chugging along, but beneath the surface my brain is putting two and two together, all by itself.
I couldn't have asked for a better feeling compared to that nauseous sensation I had one year ago, while sitting in those hospital waiting rooms. It's been a steep learning curve, but with the CI my brain is clicking. It's starting to sprint along instead of stumbling. It's hearing!
Today, after meeting with my auditory therapist, I walked out grinning. My one-year CI remapping will be in a few weeks, and although I've reached the point where I'm continually cranking the volume up on my processor, itching once again for more sound and more range, what I have to work with is pretty remarkable.
First exercise: open set of random sentences that I wasn't allowed to look at or study beforehand. I got half of them completely correct on the first try, and got large chunks of the rest (with some missed words or slight flubs on phonemes). My score: 75%, give or take, maybe even 80%.
Second exercise: minimal-pair drills with monosyllabic words, probably one of the hardest tasks for me since I'm literally listening for a difference of a single phoneme, while listening without any context. My score: 90%. Ninety freaking percent.
And the best part: while I felt confident enough throughout, I had one of those head-spinning moments afterwards when I saw the numbers. Why, hadn't I been guessing most of the time? Doesn't seem like it. My conscious mind keeps chugging along, but beneath the surface my brain is putting two and two together, all by itself.
I couldn't have asked for a better feeling compared to that nauseous sensation I had one year ago, while sitting in those hospital waiting rooms. It's been a steep learning curve, but with the CI my brain is clicking. It's starting to sprint along instead of stumbling. It's hearing!
Wednesday, June 1, 2011
What's in a Word?
Semantics. Connotations. Linguistic accuracy. What's in a name, anyway?
As someone who lives with a hearing loss, I've long struggled with how to label myself. Granted, when I was young, it was simple: I was deaf. (Disclaimer: little-d, not big-D. The divide, which occurs over culture and identity, is something that I won't go into too much here. Suffice it to say that I view myself as having always been removed from the Deaf community.) And, as someone who had that distinction clear inside her own mind, I became annoyed with the occasional insistence that hearing people had at calling me "hearing impaired." I always preferred the term "deaf" to that clunky, overly-politically-correct, disability-focused word. To an extent, the term can still make me bristle.
However, since my cochlear implant things have grown even less simple. I've discovered problems with calling myself "deaf." Is it really fair to use that term, when at this point I am hearing at almost a normal-range threshold? (Hearing, mind you, not necessarily understanding.) In a way, saying that I am deaf denies the progress I've made in learning how to hear. Moreover, it embraces a binary that hearing people, all too often, are too quick to embrace. That is, they have a difficult time conceptualizing what it's like to live with a hearing loss: they tend to think that it's all or nothing. Either you can hear, and understand everything, or you can't hear at all. The word "deaf" locks me at the far end of that spectrum - the end of the spectrum that I've spent the last 11 months trying to escape. Granted, without my CI I am literally walking in silence. I am still deaf. But, in the context of living in the world and talking and interacting and - whoo-hoo! - hearing, it hardly seems accurate to describe myself that way. "Deaf" doesn't acknowledge my everyday reality, and it gives other people misconceptions besides.
If I don't personally use "deaf" as a cultural term, and if I don't use it as a descriptive term, then what should I call myself? In the days right after the CI, when my whole life seemed chaotic and new, this question was the least of my troubles. But now, as I settle more into this hearing life and start to take it for granted, I've started feeling more conflicted.
First of all, I refuse to say that I am "hearing impaired." Besides the history that I associate with the term, I feel that it's not entirely accurate. I am hearing so well, and the CI has worked out so positively, that I can't call what I hear "impaired." The sounds entering my brain are there - they're just different from what hearing people hear, and I'm still en route to figuring them out myself.
Moving on. Deaf: feels habitual, feels comfortable, but is off the mark. Hearing: pshaw, no. Hearing-impaired: certainly not. How about "differently hearing"? Sounds awkward, and verges on euphemism. Atypically hearing, alternative hearing, hearing through a processor, hearing more than you think but understanding less than you think, hearing disrupted, hearing-but-interpretatively-challenged, in my own hearing world, en-route-to-alternate-hearing-universe...
In the end, I'm going to throw up my hands and call myself cyborg-hearing! (Kidding.) Or, at least, someone for whom the deconstructing effect of the CI has contributed to an increased resistance of classifications. Even if I still need a word with which to describe myself to all of those typically-hearing people.
As someone who lives with a hearing loss, I've long struggled with how to label myself. Granted, when I was young, it was simple: I was deaf. (Disclaimer: little-d, not big-D. The divide, which occurs over culture and identity, is something that I won't go into too much here. Suffice it to say that I view myself as having always been removed from the Deaf community.) And, as someone who had that distinction clear inside her own mind, I became annoyed with the occasional insistence that hearing people had at calling me "hearing impaired." I always preferred the term "deaf" to that clunky, overly-politically-correct, disability-focused word. To an extent, the term can still make me bristle.
However, since my cochlear implant things have grown even less simple. I've discovered problems with calling myself "deaf." Is it really fair to use that term, when at this point I am hearing at almost a normal-range threshold? (Hearing, mind you, not necessarily understanding.) In a way, saying that I am deaf denies the progress I've made in learning how to hear. Moreover, it embraces a binary that hearing people, all too often, are too quick to embrace. That is, they have a difficult time conceptualizing what it's like to live with a hearing loss: they tend to think that it's all or nothing. Either you can hear, and understand everything, or you can't hear at all. The word "deaf" locks me at the far end of that spectrum - the end of the spectrum that I've spent the last 11 months trying to escape. Granted, without my CI I am literally walking in silence. I am still deaf. But, in the context of living in the world and talking and interacting and - whoo-hoo! - hearing, it hardly seems accurate to describe myself that way. "Deaf" doesn't acknowledge my everyday reality, and it gives other people misconceptions besides.
If I don't personally use "deaf" as a cultural term, and if I don't use it as a descriptive term, then what should I call myself? In the days right after the CI, when my whole life seemed chaotic and new, this question was the least of my troubles. But now, as I settle more into this hearing life and start to take it for granted, I've started feeling more conflicted.
First of all, I refuse to say that I am "hearing impaired." Besides the history that I associate with the term, I feel that it's not entirely accurate. I am hearing so well, and the CI has worked out so positively, that I can't call what I hear "impaired." The sounds entering my brain are there - they're just different from what hearing people hear, and I'm still en route to figuring them out myself.
Moving on. Deaf: feels habitual, feels comfortable, but is off the mark. Hearing: pshaw, no. Hearing-impaired: certainly not. How about "differently hearing"? Sounds awkward, and verges on euphemism. Atypically hearing, alternative hearing, hearing through a processor, hearing more than you think but understanding less than you think, hearing disrupted, hearing-but-interpretatively-challenged, in my own hearing world, en-route-to-alternate-hearing-universe...
In the end, I'm going to throw up my hands and call myself cyborg-hearing! (Kidding.) Or, at least, someone for whom the deconstructing effect of the CI has contributed to an increased resistance of classifications. Even if I still need a word with which to describe myself to all of those typically-hearing people.
Saturday, May 14, 2011
A Meeting With Mahler
Last night I went on a grant-funded trip to the San Francisco Symphony - something I couldn't have imagined myself doing a year ago, much less enjoying. This was the first time I'd ever been to a symphony or to a large concert hall, although I think I once might have been dragged to a orchestral performance when I was little. (In which I sat, bored and frustrated and fidgety. Nothing about the actual orchestra stands out in my mind, only that sense of interior confinement and angst.)
Needless to say, this time was different. It's now been almost eleven months since I got my cochlear implant (how does the time go so fast?), and the sense of curiosity and bravery that I now have about trying new sound-oriented events is, I think, one of the best outcomes of that journey. Walking into the symphony, I did not worry about what artistic impression I would grasp or how I would sit through it for an hour and a half. I did not worry about being excluded. I just went, feeling eager and admittedly a little bit proud to be able to experience it with everybody else. When the music started, I leaned forward and watched - and, more importantly, listened - for a span of time that seemed to fly by but also hang suspended in the eternal expansion of a moment.
I regret to say that what I heard, I lack the vocabulary to describe. The language of music lies beyond every form of language that I've learned to use. All I can say is that I liked it, was borne aloft by it, even, although I cannot say why. The symphony in San Francisco was playing Mahler's Symphony No. 6, and as the first movement started I felt the usual sensations that I feel when trying to settle into a piece of complex music. I twiddled my CI volume, trying to get it exactly right as the notes settled into a whisper and then swelled, almost knocking me back into my seat with their sudden energy.
Volume set, I listened. Or tried to. My mind, as usual, got fidgety. My gaze roved about. I studied the people sitting in front of me, looked at the architecture and the patterns on the ceiling. I tried to count how many symphony players there were, to see when their instruments were coming in and out. I thought of the most off-topic, improbable things. It wasn't that I was bored, or that the symphony failed to hold my attention. It was that, once again, I'm simply not used to surrendering my thoughts to listening. My mind clings too strongly to the visual and the imaginative. It is too used to amusing itself when the auditory information of the world goes whizzing by. Anything to do with sound still feels foreign.
But, finally, about an hour into the symphony, I felt those old habits starting to loosen their grip. (I shake my head that it took that long.) The mental fidgeting stopped, and I relaxed into the music. It struck me that I was being transported to the fringes of a different state of consciousness, or of thinking, which was the same state of consciousness that the conductor and all the players must have existed in. The symphony seemed to draw collective breaths before my eyes (or ears!), to flow from one section to the next like a giant living thing. It exhausted me to think of playing an instrument for as long as they did; I thought of the physical precision, the mental sharpness of timing each note to merge with the rest. Yet the players kept going, tirelessly, the conductor breathing energy into their efforts like a bellows. I did not want it to end. It seemed that it never would or could.
When I stood up to applaud like the rest, I only wished I'd been able to summarize what I'd heard. But the symphony had taught me more about music than I'd known walking in the door: I now could pick out when various instruments came in, or slightly anticipate the feeling that linked one section to the next. I'd learned to have my interest piqued by auditory surprises (such as when someone rang a drum that looked like a large sledgehammer and made me jump). Most of all, I realized how much I enjoyed the (for lack of a better word) organic feel of this kind of performance. Not only did I enjoy listening - I also enjoyed watching, soaking in the atmosphere, being there. On the way back from San Francisco, when the people I was with turned on rock music in the car, it just wasn't the same.
Needless to say, this time was different. It's now been almost eleven months since I got my cochlear implant (how does the time go so fast?), and the sense of curiosity and bravery that I now have about trying new sound-oriented events is, I think, one of the best outcomes of that journey. Walking into the symphony, I did not worry about what artistic impression I would grasp or how I would sit through it for an hour and a half. I did not worry about being excluded. I just went, feeling eager and admittedly a little bit proud to be able to experience it with everybody else. When the music started, I leaned forward and watched - and, more importantly, listened - for a span of time that seemed to fly by but also hang suspended in the eternal expansion of a moment.
I regret to say that what I heard, I lack the vocabulary to describe. The language of music lies beyond every form of language that I've learned to use. All I can say is that I liked it, was borne aloft by it, even, although I cannot say why. The symphony in San Francisco was playing Mahler's Symphony No. 6, and as the first movement started I felt the usual sensations that I feel when trying to settle into a piece of complex music. I twiddled my CI volume, trying to get it exactly right as the notes settled into a whisper and then swelled, almost knocking me back into my seat with their sudden energy.
Volume set, I listened. Or tried to. My mind, as usual, got fidgety. My gaze roved about. I studied the people sitting in front of me, looked at the architecture and the patterns on the ceiling. I tried to count how many symphony players there were, to see when their instruments were coming in and out. I thought of the most off-topic, improbable things. It wasn't that I was bored, or that the symphony failed to hold my attention. It was that, once again, I'm simply not used to surrendering my thoughts to listening. My mind clings too strongly to the visual and the imaginative. It is too used to amusing itself when the auditory information of the world goes whizzing by. Anything to do with sound still feels foreign.
But, finally, about an hour into the symphony, I felt those old habits starting to loosen their grip. (I shake my head that it took that long.) The mental fidgeting stopped, and I relaxed into the music. It struck me that I was being transported to the fringes of a different state of consciousness, or of thinking, which was the same state of consciousness that the conductor and all the players must have existed in. The symphony seemed to draw collective breaths before my eyes (or ears!), to flow from one section to the next like a giant living thing. It exhausted me to think of playing an instrument for as long as they did; I thought of the physical precision, the mental sharpness of timing each note to merge with the rest. Yet the players kept going, tirelessly, the conductor breathing energy into their efforts like a bellows. I did not want it to end. It seemed that it never would or could.
When I stood up to applaud like the rest, I only wished I'd been able to summarize what I'd heard. But the symphony had taught me more about music than I'd known walking in the door: I now could pick out when various instruments came in, or slightly anticipate the feeling that linked one section to the next. I'd learned to have my interest piqued by auditory surprises (such as when someone rang a drum that looked like a large sledgehammer and made me jump). Most of all, I realized how much I enjoyed the (for lack of a better word) organic feel of this kind of performance. Not only did I enjoy listening - I also enjoyed watching, soaking in the atmosphere, being there. On the way back from San Francisco, when the people I was with turned on rock music in the car, it just wasn't the same.
Wednesday, April 20, 2011
The Black Box, Revisited
This brain business is freaking me out. I’m wondering how much more complex my mind is than I consciously realize. Today I had another auditory therapy appointment, my first since last quarter, and while I walked away feeling excited, I also walked away feeling unsettled. What exactly is going on inside that black box that I don’t understand?
To offer a quick recap: my therapist and I sat down and discussed my progress over the last month or so, then proceeded to listening exercises that I’ve done a few times before. Throughout, she commented on my growing confidence and poise with listening, or at least my growing willingness to persevere with deciphering what I hear. To paraphrase her words, she told me: “Your entire life, you’ve had to hang back, to resign yourself and say, ‘I can’t do it, I can’t understand this.’ You’ve felt constantly unsure and you’ve grown used to being cautious as a result. Now you have this wonderful new tool that helps you engage better, and you’re learning how to overcome that hesitation that you’ve grown used to.”
How true, not only for me but for anyone else with a hearing loss. And how nice to have this perspective articulated so clearly. Disengagement has been a survival mechanism for me for so long that it’s hard for me to commit my brain to listening, to trying to piece the sounds together despite having less than ten months’ experience with this auditory mess. The words streak by, not making any sense at first, that old response kicks in and I think “I can’t do this! For heaven's sake, I’m deaf!” and then I get overwhelmed and implode and my mind switches off. I don’t do this intentionally, I don’t think. It’s not that I mean to give up. It’s that habit (by now, almost instinct) tells me that my efforts will be futile and that trying isn’t even an option. Spoken word gibberish soup, again. So much for that.
But when I do try, strange things happen. One of today’s exercises dealt with listening to a simple sentence involving two words: “Please pick up (food item) and (food item) from the store.” Old hat, this exercise, even while the words to engrain in my auditory memory seem limitless! Some of the food words, I’d heard often enough to get right away, such as hamburgers and French fries. Others were more unexpected, and when my auditory therapist saw that I wasn’t getting them she would switch to verbally describing them to give me clues, instead of either 1) repeating the word over and over again while I got progressively more frustrated, or 2) throwing in the towel and telling me the word outright. This backroads strategy is one that she’s used from the beginning, to force me to listen in the context of language. It’s also very hard for me right now. Remember, I’m listening to full-bodied descriptive sentences without lipreading. Talk about a jump up!
So, today I sat and listened to her describing this unknown word using other unknown words, the sounds piling up and toppling over and burying me in their rush, and while I couldn’t have told you what I was hearing I also wasn’t completely overwhelmed. This time was different. The words going by sounded like English words, they sounded like language. They sounded comfy, like they could have been my friends. Even if it was impossible for me to say exactly what they were, at least after the fact – I felt more like I was brushing each one of them as they passed, but not strongly enough to sink in my hook and reel them in. Once in a while, one or two would jump up and I would grasp a fleeting phrase, but then struggle to hold on as the stream continued. “This is a… breakfast… You use it to… and it… green…” Other times, I would rustle against individual sounds but couldn’t think fast enough to assemble them into words.
Yet, out of this ghostly, translucent chaos, some sort of picture emerged. The first time this happened, I listened to my therapist’s stream of speech, sat there subconsciously ruminating, and then said, “Yogurt.”
“Very good!” she told me.
“That’s really what it was? Yogurt?”
“Yes.”
How did I ever get that? All I’d heard, at least consciously, was something about flavors and strawberries. Impossible, for my brain to make the leap from that to “yogurt.”
But then it happened again. The word in question: zucchini. I listened, gathered that my therapist was talking about a long and green vegetable, but instead of searching through my mental food vocabulary to find something that fit the bill, the word popped up and came to me right then. I knew. It had been there all along, beneath the surface of my brain, but hesitating and not knowing how to fight its way into conscious articulation.
And again. Something about cutting and breakfast and sugar, only half-grasped and feeling like a murky dream: without a doubt, it must be grapefruit. I wasn’t assembling clues, because the clues themselves hardly made sense. Unless they were assembling subconsciously, just like everything else?
Whoa whoa whoa, wait. What the eff is going on? I don’t get this. How can I so definitively say something, based on so little (read: almost nonexistent) proof? Unless the proof is there in abundance, somewhere deep within that black box, and I’m not capable of realizing it? What determines whether the sounds click together to make a word or whether they don’t? How can all this be happening without the conscious input of my work ethic or deductive reasoning or problem-solving skills, but based only on my willingness to sit there and listen to and accept what seems like chaos? How can my brain be so resourceful, all by itself and seemingly without me?
And, at the same time, how amazing is that?!
To offer a quick recap: my therapist and I sat down and discussed my progress over the last month or so, then proceeded to listening exercises that I’ve done a few times before. Throughout, she commented on my growing confidence and poise with listening, or at least my growing willingness to persevere with deciphering what I hear. To paraphrase her words, she told me: “Your entire life, you’ve had to hang back, to resign yourself and say, ‘I can’t do it, I can’t understand this.’ You’ve felt constantly unsure and you’ve grown used to being cautious as a result. Now you have this wonderful new tool that helps you engage better, and you’re learning how to overcome that hesitation that you’ve grown used to.”
How true, not only for me but for anyone else with a hearing loss. And how nice to have this perspective articulated so clearly. Disengagement has been a survival mechanism for me for so long that it’s hard for me to commit my brain to listening, to trying to piece the sounds together despite having less than ten months’ experience with this auditory mess. The words streak by, not making any sense at first, that old response kicks in and I think “I can’t do this! For heaven's sake, I’m deaf!” and then I get overwhelmed and implode and my mind switches off. I don’t do this intentionally, I don’t think. It’s not that I mean to give up. It’s that habit (by now, almost instinct) tells me that my efforts will be futile and that trying isn’t even an option. Spoken word gibberish soup, again. So much for that.
But when I do try, strange things happen. One of today’s exercises dealt with listening to a simple sentence involving two words: “Please pick up (food item) and (food item) from the store.” Old hat, this exercise, even while the words to engrain in my auditory memory seem limitless! Some of the food words, I’d heard often enough to get right away, such as hamburgers and French fries. Others were more unexpected, and when my auditory therapist saw that I wasn’t getting them she would switch to verbally describing them to give me clues, instead of either 1) repeating the word over and over again while I got progressively more frustrated, or 2) throwing in the towel and telling me the word outright. This backroads strategy is one that she’s used from the beginning, to force me to listen in the context of language. It’s also very hard for me right now. Remember, I’m listening to full-bodied descriptive sentences without lipreading. Talk about a jump up!
So, today I sat and listened to her describing this unknown word using other unknown words, the sounds piling up and toppling over and burying me in their rush, and while I couldn’t have told you what I was hearing I also wasn’t completely overwhelmed. This time was different. The words going by sounded like English words, they sounded like language. They sounded comfy, like they could have been my friends. Even if it was impossible for me to say exactly what they were, at least after the fact – I felt more like I was brushing each one of them as they passed, but not strongly enough to sink in my hook and reel them in. Once in a while, one or two would jump up and I would grasp a fleeting phrase, but then struggle to hold on as the stream continued. “This is a… breakfast… You use it to… and it… green…” Other times, I would rustle against individual sounds but couldn’t think fast enough to assemble them into words.
Yet, out of this ghostly, translucent chaos, some sort of picture emerged. The first time this happened, I listened to my therapist’s stream of speech, sat there subconsciously ruminating, and then said, “Yogurt.”
“Very good!” she told me.
“That’s really what it was? Yogurt?”
“Yes.”
How did I ever get that? All I’d heard, at least consciously, was something about flavors and strawberries. Impossible, for my brain to make the leap from that to “yogurt.”
But then it happened again. The word in question: zucchini. I listened, gathered that my therapist was talking about a long and green vegetable, but instead of searching through my mental food vocabulary to find something that fit the bill, the word popped up and came to me right then. I knew. It had been there all along, beneath the surface of my brain, but hesitating and not knowing how to fight its way into conscious articulation.
And again. Something about cutting and breakfast and sugar, only half-grasped and feeling like a murky dream: without a doubt, it must be grapefruit. I wasn’t assembling clues, because the clues themselves hardly made sense. Unless they were assembling subconsciously, just like everything else?
Whoa whoa whoa, wait. What the eff is going on? I don’t get this. How can I so definitively say something, based on so little (read: almost nonexistent) proof? Unless the proof is there in abundance, somewhere deep within that black box, and I’m not capable of realizing it? What determines whether the sounds click together to make a word or whether they don’t? How can all this be happening without the conscious input of my work ethic or deductive reasoning or problem-solving skills, but based only on my willingness to sit there and listen to and accept what seems like chaos? How can my brain be so resourceful, all by itself and seemingly without me?
And, at the same time, how amazing is that?!
Thursday, April 7, 2011
Breaking Through the Jargon
In the last couple of weeks, I’ve had a few interesting experiences with appointments: among others, visits to the doctor and the dentist. All have emphasized to me how I continue to progress with my CI (even if, again, I don’t feel like I’m progressing).
Now, I’ve always hated going to any sort of appointment by myself. The reason, I think, is fairly obvious. There are too many people to adjust to for lipreading, too much important information to catch (especially with medical terms! oy vey), and too many details that too easily slip beneath my notice. Up until the time I left for college, and even past then, I always took a parent in with me for any kind of appointment, just as a safety net. That isn’t an option anymore. Nor, really, is requesting an agency interpreter to show up for every little thing – I’d consider that in a dire situation, but as someone who sometimes feels like she spends a quarter of her life scheduling interpreters in one way or another, I’d rather cling to my sense of freedom. As well as personal privacy.
Appointments aren’t the highest item on my worry-o-meter, but they’re pretty high. So, in the last month, I found myself pleasantly surprised when I visited the dentist and heard the technician say, “Now, I’m going to floss your teeth,” as well as some other things I don’t remember. When I went to see the doctor, she slipped behind me and (without meaning to, I’m sure) spoke from where I couldn’t see her face. “Take a deep breath,” she said, placing the stethoscope on my back. And I understood! If only she knew how much time, hard work, anxiety, joy, and pride had gone into that one breath I obligingly took. Other things, like “I’ll be right back,” “Just step this way,” and “Very good” also stood out to me, like tiny rays of light against a murky gray surface. Falling like candies into my hand.
I still might not be perfect, but when my CI steps in like this it assures me that I will be okay, that I am capable of figuring out routine hearing-people things like going to the doctor by myself. But still – every time one of those tiny comprehension moments occurs, I am so, so stunned. I never get used to the feeling of how easy understanding is during the moments where things fall into place. (Even as I type this right now, I’m grinning uncontrollably.)
Dear readers, are these tiny moments getting redundant or boring yet? Of course not! For me they never will, because I cannot ever imagine myself taking them for granted.
Now, I’ve always hated going to any sort of appointment by myself. The reason, I think, is fairly obvious. There are too many people to adjust to for lipreading, too much important information to catch (especially with medical terms! oy vey), and too many details that too easily slip beneath my notice. Up until the time I left for college, and even past then, I always took a parent in with me for any kind of appointment, just as a safety net. That isn’t an option anymore. Nor, really, is requesting an agency interpreter to show up for every little thing – I’d consider that in a dire situation, but as someone who sometimes feels like she spends a quarter of her life scheduling interpreters in one way or another, I’d rather cling to my sense of freedom. As well as personal privacy.
Appointments aren’t the highest item on my worry-o-meter, but they’re pretty high. So, in the last month, I found myself pleasantly surprised when I visited the dentist and heard the technician say, “Now, I’m going to floss your teeth,” as well as some other things I don’t remember. When I went to see the doctor, she slipped behind me and (without meaning to, I’m sure) spoke from where I couldn’t see her face. “Take a deep breath,” she said, placing the stethoscope on my back. And I understood! If only she knew how much time, hard work, anxiety, joy, and pride had gone into that one breath I obligingly took. Other things, like “I’ll be right back,” “Just step this way,” and “Very good” also stood out to me, like tiny rays of light against a murky gray surface. Falling like candies into my hand.
I still might not be perfect, but when my CI steps in like this it assures me that I will be okay, that I am capable of figuring out routine hearing-people things like going to the doctor by myself. But still – every time one of those tiny comprehension moments occurs, I am so, so stunned. I never get used to the feeling of how easy understanding is during the moments where things fall into place. (Even as I type this right now, I’m grinning uncontrollably.)
Dear readers, are these tiny moments getting redundant or boring yet? Of course not! For me they never will, because I cannot ever imagine myself taking them for granted.
Thursday, March 24, 2011
The D-Bomb
I’m never quite sure how to drop it, or when. But I need to figure it out.
By “it,” I mean the question of telling people I meet that I'm deaf. I’m not exactly like them, I can’t do certain things, and specific accommodations need to be made for me, but I also want to be clear about the abilities that I do have and to avoid making the hearing-loss issue intimidating. It’s a quandary that, post-CI, I still struggle with. How to be clear, straightforward, approachable, fair, but yet realistic?
It’s a tricky challenge with no one-size-fits-all solution. Sometimes, at the outset of a conversation or a relationship, dropping the “d-bomb” simply isn’t necessary – or relevant. When applying for a job or internship position, no way am I going to mention it. Why should I, when it doesn’t at all affect my qualifications or my ability to perform? Starting every introduction email with the disclaimer, “By the way, before you decide how to interact with me in the future, you should know that I am deaf” – that’s not an option. It’s selling myself short. I refuse to let one aspect of my identity define my every interaction. In pursuing my real-world activities, I am a student, a reader and a writer, a hard worker, a participator, et cetera, first. I begin long-distance interactions simply as myself – which of course brings up the interesting question of how my deafness fits into this holistic sense of self-identity. (Messy question; not going there.)
However, when the time for an interview rolls around, or when I find myself about to (gulp) actually meet the individual with whom I’ve been corresponding, I need to decide what to do. In the past, I’ve tried both approaches. I’ve stayed mum about the d-word and showed up hoping that the situation won’t escalate into something unmanageable, and/or that my lipreading skills will be able to save me.
(Sometimes, that’s worked beautifully. Other times, I find myself reeling and backtracking, trying to explain away the minor snags that have suddenly turned into ogres. It depends on the person and the situation, it really does. If I bring up the deafness issue with some people, I look back afterwards and wonder why I made it such a big deal. Why, it really was irrelevant. Other people, however, need to be slammed over the head with it before I feel like I can approach a semblance of my normal ability to function.)
Or, I’ll play my cards straight before I even meet this person face-to-face. Deep breath. Time to let the cat out of the bag. I’m embarrassed every time it happens, for whatever reason. I suppose because I’ve succeeded so far in my life goal of Interacting Normally With Hearing People, and now I’m about to voluntarily set myself apart.
(Interestingly, this approach of prior disclosure is also successful, or not, depending on the person and the situation. Some people, if they’ve been given time to ruminate over “Ohmygoshshe’sdeafIdon’tknowwhattodo,” come to pieces in the actual interaction. They’re more nervous than I am, they overenunciate, they question themselves, and so the entire meeting becomes damage control on my part, trying to reassure said person back to the impression-of-hearing-person-normalcy that they had before. Other people, however, simply appreciate the heads-up. I’ve had several surprising situations arise where I’ll meet someone who unexpectedly knows some sign language or who already has deaf friends or family members – if I hadn’t mentioned my own deafness, I wouldn’t have received the gift, so to speak, of being able to interact on this level.)
The d-bomb is troublesome even in casual interactions. Sometimes I’ll be out and about and meet someone new. He or she is easy to lipread, and so we settle into a comfortable conversation without me ever bringing up my hearing loss at all. I’m enjoying myself when this new hearing companion does something that does not adhere with my version of reality, such as saying “Give me a phone call!” At that moment, of course, I have to break the mold, bring my deafness out of the closet, and say, “Whoa, hold on.” And then, of course, the situation feels awkward because I hadn’t mentioned this gee-probably-rather-important-fact before. Why? It wasn’t necessary. I was comfortable then. Honestly, I forgot.
Or, I’ll indicate to a new friend what I need in a one-on-one interaction, only to see that friend again in a group and realize that he or she really doesn’t get the big picture, doesn’t get that what works in one situation falls apart in another. Then, I’m obliged to speak up and clarify further, but too often it becomes easy to embrace a self-defeatist mindset and let things unfold as they will.
This is a problem: I tend to only mention my deafness when it becomes troublesome. Otherwise, I shove it under the carpet and ignore it. Ignoring it is something I’ve tried to do for a while, and it doesn’t work. Not only is it unfair to me, it’s unfair to the people whom I could construct valuable relationships with, if they only knew what to do. Approaching the hearing world head-on was part of my decision to get a CI, and since then I’ve gotten progressively better at being up-front. (But, but – there are situations where being up-front isn’t necessary! Where I can cope! Where lipreading is fine! Where the CI is amazing! Where I don’t feel the need to let every single person I meet know just how complicated all of this is! Like I said, all of these questions can get tricky.)
There are other questions I’m mulling over, too. For instance, what language should I use? Oftentimes “Hello, my name is Rachel and I’m deaf” doesn’t seem to work. Hearing people don’t know what to do with that word, that entire concept. They’ve often never thought about what it means. I’m as likely to get stares of shock as I am offers of accommodation. One of my deaf friends once advised me to introduce it through subtler means and action-significant words, such as “I lipread” or “I need you to look at me when you talk.” There, is that better? I’ve revealed something important about myself but also given my companion some indication of how he or she should behave. That's more productive and fair, isn't it?
Interestingly, talking about my CI fits into the entire d-bomb dilemma. “So that thing lets you hear?” people will ask me. I hesitate before giving them an answer. I want to explain that hearing isn’t the same as understanding, that it’s a beast of a process, that what I’m capable of now isn’t what I’ll be capable of in six months, or (certainly not!) what I was capable of when I first got switched on. But, for the uninitiated, hearing is a binary: either you can, or you can’t. I don’t want to contribute to misconceptions that, with my CI, I’m able to function one hundred percent normally, but I also don’t want to underemphasize the immense difference it has made in my life. So I sidestep the question a bit. I try to respond to the confused inquiries of “If you have a cochlear implant, then, doesn’t that mean you’re not deaf after all?” I try to address how lipreading and structuring my environment are still very important tools, even though, yes, I technically “can” hear at an almost-normal plane. The concept of balance between two worlds, deaf and hearing, is difficult for many people. And, in a way, the CI has only made it more complicated to explain.
In the end, it’s easy to want to give up. I find that sometimes there’s no way to be consistent about how I present myself and my deafness. But there must be a way to be consistently included, consistently understood, consistently enabled. There must be – just hold on, though, I’m working on it.
By “it,” I mean the question of telling people I meet that I'm deaf. I’m not exactly like them, I can’t do certain things, and specific accommodations need to be made for me, but I also want to be clear about the abilities that I do have and to avoid making the hearing-loss issue intimidating. It’s a quandary that, post-CI, I still struggle with. How to be clear, straightforward, approachable, fair, but yet realistic?
It’s a tricky challenge with no one-size-fits-all solution. Sometimes, at the outset of a conversation or a relationship, dropping the “d-bomb” simply isn’t necessary – or relevant. When applying for a job or internship position, no way am I going to mention it. Why should I, when it doesn’t at all affect my qualifications or my ability to perform? Starting every introduction email with the disclaimer, “By the way, before you decide how to interact with me in the future, you should know that I am deaf” – that’s not an option. It’s selling myself short. I refuse to let one aspect of my identity define my every interaction. In pursuing my real-world activities, I am a student, a reader and a writer, a hard worker, a participator, et cetera, first. I begin long-distance interactions simply as myself – which of course brings up the interesting question of how my deafness fits into this holistic sense of self-identity. (Messy question; not going there.)
However, when the time for an interview rolls around, or when I find myself about to (gulp) actually meet the individual with whom I’ve been corresponding, I need to decide what to do. In the past, I’ve tried both approaches. I’ve stayed mum about the d-word and showed up hoping that the situation won’t escalate into something unmanageable, and/or that my lipreading skills will be able to save me.
(Sometimes, that’s worked beautifully. Other times, I find myself reeling and backtracking, trying to explain away the minor snags that have suddenly turned into ogres. It depends on the person and the situation, it really does. If I bring up the deafness issue with some people, I look back afterwards and wonder why I made it such a big deal. Why, it really was irrelevant. Other people, however, need to be slammed over the head with it before I feel like I can approach a semblance of my normal ability to function.)
Or, I’ll play my cards straight before I even meet this person face-to-face. Deep breath. Time to let the cat out of the bag. I’m embarrassed every time it happens, for whatever reason. I suppose because I’ve succeeded so far in my life goal of Interacting Normally With Hearing People, and now I’m about to voluntarily set myself apart.
(Interestingly, this approach of prior disclosure is also successful, or not, depending on the person and the situation. Some people, if they’ve been given time to ruminate over “Ohmygoshshe’sdeafIdon’tknowwhattodo,” come to pieces in the actual interaction. They’re more nervous than I am, they overenunciate, they question themselves, and so the entire meeting becomes damage control on my part, trying to reassure said person back to the impression-of-hearing-person-normalcy that they had before. Other people, however, simply appreciate the heads-up. I’ve had several surprising situations arise where I’ll meet someone who unexpectedly knows some sign language or who already has deaf friends or family members – if I hadn’t mentioned my own deafness, I wouldn’t have received the gift, so to speak, of being able to interact on this level.)
The d-bomb is troublesome even in casual interactions. Sometimes I’ll be out and about and meet someone new. He or she is easy to lipread, and so we settle into a comfortable conversation without me ever bringing up my hearing loss at all. I’m enjoying myself when this new hearing companion does something that does not adhere with my version of reality, such as saying “Give me a phone call!” At that moment, of course, I have to break the mold, bring my deafness out of the closet, and say, “Whoa, hold on.” And then, of course, the situation feels awkward because I hadn’t mentioned this gee-probably-rather-important-fact before. Why? It wasn’t necessary. I was comfortable then. Honestly, I forgot.
Or, I’ll indicate to a new friend what I need in a one-on-one interaction, only to see that friend again in a group and realize that he or she really doesn’t get the big picture, doesn’t get that what works in one situation falls apart in another. Then, I’m obliged to speak up and clarify further, but too often it becomes easy to embrace a self-defeatist mindset and let things unfold as they will.
This is a problem: I tend to only mention my deafness when it becomes troublesome. Otherwise, I shove it under the carpet and ignore it. Ignoring it is something I’ve tried to do for a while, and it doesn’t work. Not only is it unfair to me, it’s unfair to the people whom I could construct valuable relationships with, if they only knew what to do. Approaching the hearing world head-on was part of my decision to get a CI, and since then I’ve gotten progressively better at being up-front. (But, but – there are situations where being up-front isn’t necessary! Where I can cope! Where lipreading is fine! Where the CI is amazing! Where I don’t feel the need to let every single person I meet know just how complicated all of this is! Like I said, all of these questions can get tricky.)
There are other questions I’m mulling over, too. For instance, what language should I use? Oftentimes “Hello, my name is Rachel and I’m deaf” doesn’t seem to work. Hearing people don’t know what to do with that word, that entire concept. They’ve often never thought about what it means. I’m as likely to get stares of shock as I am offers of accommodation. One of my deaf friends once advised me to introduce it through subtler means and action-significant words, such as “I lipread” or “I need you to look at me when you talk.” There, is that better? I’ve revealed something important about myself but also given my companion some indication of how he or she should behave. That's more productive and fair, isn't it?
Interestingly, talking about my CI fits into the entire d-bomb dilemma. “So that thing lets you hear?” people will ask me. I hesitate before giving them an answer. I want to explain that hearing isn’t the same as understanding, that it’s a beast of a process, that what I’m capable of now isn’t what I’ll be capable of in six months, or (certainly not!) what I was capable of when I first got switched on. But, for the uninitiated, hearing is a binary: either you can, or you can’t. I don’t want to contribute to misconceptions that, with my CI, I’m able to function one hundred percent normally, but I also don’t want to underemphasize the immense difference it has made in my life. So I sidestep the question a bit. I try to respond to the confused inquiries of “If you have a cochlear implant, then, doesn’t that mean you’re not deaf after all?” I try to address how lipreading and structuring my environment are still very important tools, even though, yes, I technically “can” hear at an almost-normal plane. The concept of balance between two worlds, deaf and hearing, is difficult for many people. And, in a way, the CI has only made it more complicated to explain.
In the end, it’s easy to want to give up. I find that sometimes there’s no way to be consistent about how I present myself and my deafness. But there must be a way to be consistently included, consistently understood, consistently enabled. There must be – just hold on, though, I’m working on it.
Sunday, March 13, 2011
Written While Procrastinating
It's amazing how, even on a gloomy overcast day that's robbed me of an hour's sleep, I'm able to sit listening to this solo piano station on Pandora and automatically feel energized.
It's amazing how, on the good songs, the notes shoot up and something in me rises too, like muscles heaving as I inhale sweet clear air and turn back to my textbooks with greater gusto.
It's amazing how much of this I don't understand, yet how I still gravitate to something just because it "sounds good."
It's even amazing how my sister laughs at me and says, "You used to hate music!"
So "hate" probably isn't the most accurate word to use here. But point conceded. Very, very gladly conceded.
It's amazing how, on the good songs, the notes shoot up and something in me rises too, like muscles heaving as I inhale sweet clear air and turn back to my textbooks with greater gusto.
It's amazing how much of this I don't understand, yet how I still gravitate to something just because it "sounds good."
It's even amazing how my sister laughs at me and says, "You used to hate music!"
So "hate" probably isn't the most accurate word to use here. But point conceded. Very, very gladly conceded.
Monday, March 7, 2011
Backtrack
It’s funny that I wrote about destabilizing moments in my last post, because I had one – albeit of a very different sort – this past weekend. Like a total dunce, I forgot to recharge my ensemble of CI batteries on Friday night, and so woke up on Saturday to find that I had a quarter of the juice in each battery, but that was all. Thinking that I’d remember to swap out in the middle of the day before my BTE died completely, I set out.
Of course, lunch came and went without this resolution even crossing my mind, and in the early afternoon the thrum of noise shut off. I had just gotten on a horse five minutes earlier, and the sudden silence was startling. No more birds, no more gravel crunching underfoot, no more wind. Just a deadening hush. My first reaction, I now laugh to say, was of panic. How could I deal with this silence? For a whole ride? And then for the time period afterward until I could get back to my room to switch batteries, a good forty-five minutes in which I would have to walk around and function and – banish the thought – talk to people? I wanted my sound back!
I’ll be honest, I thought about dismounting right there and running for the woods. It was something of an irrational impulse, but then another voice spoke up in my mind. You did this for twenty years, it said. You rode for twenty years, you lived for twenty years, just like this. It was fine then, and it’ll be fine now. Oh, yeah. Who was I, of all people, to doubt my ability to function without sound? Had I changed that much?
Still, as I entered the arena and proceeded with my ride, I felt less confident than usual. I spent more time looking into the faces of the riders I passed, glancing over my shoulder to be sure I hadn’t missed anything. I worried that someone would yell after me, or that something unexpected would happen nearby, and I would not hear. I even felt disconnected from what I was doing because of how I floated along in silence, muffled noise from my hearing aid notwithstanding. In short, my sound-acclimatized brain was embracing some of the fears that lay hearing people have about deafness.
When I dismounted, I passed some people in the barn and found that I suddenly did not want to talk to them. It struck me how hard it was to understand based only on lipreading and this indistinct-hearing-aid muddle. I finished up quickly, and went to meet a friend before walking back to my room together. Talking with him, my head reeled. I had to squint my eyes and focus; no sound cues were there to help me out. When I spoke, my tongue seemed to slide around in my mouth. I suddenly did not have any auditory feedback to track how I was articulating my words, and the edges of my pronunciation seemed to soften and turn to mush. I do not know how to describe this sensation: I literally could not find my verbal footing. Without my CI, my confidence, my situational awareness, my conversational skills, even the way I talked all seemed to crumble. In my mind, I could imagine what the world ought to have sounded like, but without direct auditory stimulation those imaginings became irrelevant. During those two or so hours before I replaced the battery and everything was fine again, I felt swept out to sea.
I won’t expand on this experience any farther. It’s something I’ll have to reflect on. All I have to say is: wow. My brain certainly has rewired itself, and I am stronger for it. In ways I almost have not realized.
Of course, lunch came and went without this resolution even crossing my mind, and in the early afternoon the thrum of noise shut off. I had just gotten on a horse five minutes earlier, and the sudden silence was startling. No more birds, no more gravel crunching underfoot, no more wind. Just a deadening hush. My first reaction, I now laugh to say, was of panic. How could I deal with this silence? For a whole ride? And then for the time period afterward until I could get back to my room to switch batteries, a good forty-five minutes in which I would have to walk around and function and – banish the thought – talk to people? I wanted my sound back!
I’ll be honest, I thought about dismounting right there and running for the woods. It was something of an irrational impulse, but then another voice spoke up in my mind. You did this for twenty years, it said. You rode for twenty years, you lived for twenty years, just like this. It was fine then, and it’ll be fine now. Oh, yeah. Who was I, of all people, to doubt my ability to function without sound? Had I changed that much?
Still, as I entered the arena and proceeded with my ride, I felt less confident than usual. I spent more time looking into the faces of the riders I passed, glancing over my shoulder to be sure I hadn’t missed anything. I worried that someone would yell after me, or that something unexpected would happen nearby, and I would not hear. I even felt disconnected from what I was doing because of how I floated along in silence, muffled noise from my hearing aid notwithstanding. In short, my sound-acclimatized brain was embracing some of the fears that lay hearing people have about deafness.
When I dismounted, I passed some people in the barn and found that I suddenly did not want to talk to them. It struck me how hard it was to understand based only on lipreading and this indistinct-hearing-aid muddle. I finished up quickly, and went to meet a friend before walking back to my room together. Talking with him, my head reeled. I had to squint my eyes and focus; no sound cues were there to help me out. When I spoke, my tongue seemed to slide around in my mouth. I suddenly did not have any auditory feedback to track how I was articulating my words, and the edges of my pronunciation seemed to soften and turn to mush. I do not know how to describe this sensation: I literally could not find my verbal footing. Without my CI, my confidence, my situational awareness, my conversational skills, even the way I talked all seemed to crumble. In my mind, I could imagine what the world ought to have sounded like, but without direct auditory stimulation those imaginings became irrelevant. During those two or so hours before I replaced the battery and everything was fine again, I felt swept out to sea.
I won’t expand on this experience any farther. It’s something I’ll have to reflect on. All I have to say is: wow. My brain certainly has rewired itself, and I am stronger for it. In ways I almost have not realized.
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