Saturday, May 14, 2011

A Meeting With Mahler

Last night I went on a grant-funded trip to the San Francisco Symphony - something I couldn't have imagined myself doing a year ago, much less enjoying. This was the first time I'd ever been to a symphony or to a large concert hall, although I think I once might have been dragged to a orchestral performance when I was little. (In which I sat, bored and frustrated and fidgety. Nothing about the actual orchestra stands out in my mind, only that sense of interior confinement and angst.)

Needless to say, this time was different. It's now been almost eleven months since I got my cochlear implant (how does the time go so fast?), and the sense of curiosity and bravery that I now have about trying new sound-oriented events is, I think, one of the best outcomes of that journey. Walking into the symphony, I did not worry about what artistic impression I would grasp or how I would sit through it for an hour and a half. I did not worry about being excluded. I just went, feeling eager and admittedly a little bit proud to be able to experience it with everybody else. When the music started, I leaned forward and watched - and, more importantly, listened - for a span of time that seemed to fly by but also hang suspended in the eternal expansion of a moment.

I regret to say that what I heard, I lack the vocabulary to describe. The language of music lies beyond every form of language that I've learned to use. All I can say is that I liked it, was borne aloft by it, even, although I cannot say why. The symphony in San Francisco was playing Mahler's Symphony No. 6, and as the first movement started I felt the usual sensations that I feel when trying to settle into a piece of complex music. I twiddled my CI volume, trying to get it exactly right as the notes settled into a whisper and then swelled, almost knocking me back into my seat with their sudden energy.

Volume set, I listened. Or tried to. My mind, as usual, got fidgety. My gaze roved about. I studied the people sitting in front of me, looked at the architecture and the patterns on the ceiling. I tried to count how many symphony players there were, to see when their instruments were coming in and out. I thought of the most off-topic, improbable things. It wasn't that I was bored, or that the symphony failed to hold my attention. It was that, once again, I'm simply not used to surrendering my thoughts to listening. My mind clings too strongly to the visual and the imaginative. It is too used to amusing itself when the auditory information of the world goes whizzing by. Anything to do with sound still feels foreign.

But, finally, about an hour into the symphony, I felt those old habits starting to loosen their grip. (I shake my head that it took that long.) The mental fidgeting stopped, and I relaxed into the music. It struck me that I was being transported to the fringes of a different state of consciousness, or of thinking, which was the same state of consciousness that the conductor and all the players must have existed in. The symphony seemed to draw collective breaths before my eyes (or ears!), to flow from one section to the next like a giant living thing. It exhausted me to think of playing an instrument for as long as they did; I thought of the physical precision, the mental sharpness of timing each note to merge with the rest. Yet the players kept going, tirelessly, the conductor breathing energy into their efforts like a bellows. I did not want it to end. It seemed that it never would or could.

When I stood up to applaud like the rest, I only wished I'd been able to summarize what I'd heard. But the symphony had taught me more about music than I'd known walking in the door: I now could pick out when various instruments came in, or slightly anticipate the feeling that linked one section to the next. I'd learned to have my interest piqued by auditory surprises (such as when someone rang a drum that looked like a large sledgehammer and made me jump). Most of all, I realized how much I enjoyed the (for lack of a better word) organic feel of this kind of performance. Not only did I enjoy listening - I also enjoyed watching, soaking in the atmosphere, being there. On the way back from San Francisco, when the people I was with turned on rock music in the car, it just wasn't the same.

Wednesday, April 20, 2011

The Black Box, Revisited

This brain business is freaking me out. I’m wondering how much more complex my mind is than I consciously realize. Today I had another auditory therapy appointment, my first since last quarter, and while I walked away feeling excited, I also walked away feeling unsettled. What exactly is going on inside that black box that I don’t understand?

To offer a quick recap: my therapist and I sat down and discussed my progress over the last month or so, then proceeded to listening exercises that I’ve done a few times before. Throughout, she commented on my growing confidence and poise with listening, or at least my growing willingness to persevere with deciphering what I hear. To paraphrase her words, she told me: “Your entire life, you’ve had to hang back, to resign yourself and say, ‘I can’t do it, I can’t understand this.’ You’ve felt constantly unsure and you’ve grown used to being cautious as a result. Now you have this wonderful new tool that helps you engage better, and you’re learning how to overcome that hesitation that you’ve grown used to.”

How true, not only for me but for anyone else with a hearing loss. And how nice to have this perspective articulated so clearly. Disengagement has been a survival mechanism for me for so long that it’s hard for me to commit my brain to listening, to trying to piece the sounds together despite having less than ten months’ experience with this auditory mess. The words streak by, not making any sense at first, that old response kicks in and I think “I can’t do this! For heaven's sake, I’m deaf!” and then I get overwhelmed and implode and my mind switches off. I don’t do this intentionally, I don’t think. It’s not that I mean to give up. It’s that habit (by now, almost instinct) tells me that my efforts will be futile and that trying isn’t even an option. Spoken word gibberish soup, again. So much for that.

But when I do try, strange things happen. One of today’s exercises dealt with listening to a simple sentence involving two words: “Please pick up (food item) and (food item) from the store.” Old hat, this exercise, even while the words to engrain in my auditory memory seem limitless! Some of the food words, I’d heard often enough to get right away, such as hamburgers and French fries. Others were more unexpected, and when my auditory therapist saw that I wasn’t getting them she would switch to verbally describing them to give me clues, instead of either 1) repeating the word over and over again while I got progressively more frustrated, or 2) throwing in the towel and telling me the word outright. This backroads strategy is one that she’s used from the beginning, to force me to listen in the context of language. It’s also very hard for me right now. Remember, I’m listening to full-bodied descriptive sentences without lipreading. Talk about a jump up!

So, today I sat and listened to her describing this unknown word using other unknown words, the sounds piling up and toppling over and burying me in their rush, and while I couldn’t have told you what I was hearing I also wasn’t completely overwhelmed. This time was different. The words going by sounded like English words, they sounded like language. They sounded comfy, like they could have been my friends. Even if it was impossible for me to say exactly what they were, at least after the fact – I felt more like I was brushing each one of them as they passed, but not strongly enough to sink in my hook and reel them in. Once in a while, one or two would jump up and I would grasp a fleeting phrase, but then struggle to hold on as the stream continued. “This is a… breakfast… You use it to… and it… green…” Other times, I would rustle against individual sounds but couldn’t think fast enough to assemble them into words.

Yet, out of this ghostly, translucent chaos, some sort of picture emerged. The first time this happened, I listened to my therapist’s stream of speech, sat there subconsciously ruminating, and then said, “Yogurt.”

“Very good!” she told me.

“That’s really what it was? Yogurt?”

“Yes.”

How did I ever get that? All I’d heard, at least consciously, was something about flavors and strawberries. Impossible, for my brain to make the leap from that to “yogurt.”

But then it happened again. The word in question: zucchini. I listened, gathered that my therapist was talking about a long and green vegetable, but instead of searching through my mental food vocabulary to find something that fit the bill, the word popped up and came to me right then. I knew. It had been there all along, beneath the surface of my brain, but hesitating and not knowing how to fight its way into conscious articulation.

And again. Something about cutting and breakfast and sugar, only half-grasped and feeling like a murky dream: without a doubt, it must be grapefruit. I wasn’t assembling clues, because the clues themselves hardly made sense. Unless they were assembling subconsciously, just like everything else?

Whoa whoa whoa, wait. What the eff is going on? I don’t get this. How can I so definitively say something, based on so little (read: almost nonexistent) proof? Unless the proof is there in abundance, somewhere deep within that black box, and I’m not capable of realizing it? What determines whether the sounds click together to make a word or whether they don’t? How can all this be happening without the conscious input of my work ethic or deductive reasoning or problem-solving skills, but based only on my willingness to sit there and listen to and accept what seems like chaos? How can my brain be so resourceful, all by itself and seemingly without me?

And, at the same time, how amazing is that?!

Thursday, April 7, 2011

Breaking Through the Jargon

In the last couple of weeks, I’ve had a few interesting experiences with appointments: among others, visits to the doctor and the dentist. All have emphasized to me how I continue to progress with my CI (even if, again, I don’t feel like I’m progressing).

Now, I’ve always hated going to any sort of appointment by myself. The reason, I think, is fairly obvious. There are too many people to adjust to for lipreading, too much important information to catch (especially with medical terms! oy vey), and too many details that too easily slip beneath my notice. Up until the time I left for college, and even past then, I always took a parent in with me for any kind of appointment, just as a safety net. That isn’t an option anymore. Nor, really, is requesting an agency interpreter to show up for every little thing – I’d consider that in a dire situation, but as someone who sometimes feels like she spends a quarter of her life scheduling interpreters in one way or another, I’d rather cling to my sense of freedom. As well as personal privacy.

Appointments aren’t the highest item on my worry-o-meter, but they’re pretty high. So, in the last month, I found myself pleasantly surprised when I visited the dentist and heard the technician say, “Now, I’m going to floss your teeth,” as well as some other things I don’t remember. When I went to see the doctor, she slipped behind me and (without meaning to, I’m sure) spoke from where I couldn’t see her face. “Take a deep breath,” she said, placing the stethoscope on my back. And I understood! If only she knew how much time, hard work, anxiety, joy, and pride had gone into that one breath I obligingly took. Other things, like “I’ll be right back,” “Just step this way,” and “Very good” also stood out to me, like tiny rays of light against a murky gray surface. Falling like candies into my hand.

I still might not be perfect, but when my CI steps in like this it assures me that I will be okay, that I am capable of figuring out routine hearing-people things like going to the doctor by myself. But still – every time one of those tiny comprehension moments occurs, I am so, so stunned. I never get used to the feeling of how easy understanding is during the moments where things fall into place. (Even as I type this right now, I’m grinning uncontrollably.)

Dear readers, are these tiny moments getting redundant or boring yet? Of course not! For me they never will, because I cannot ever imagine myself taking them for granted.

Thursday, March 24, 2011

The D-Bomb

I’m never quite sure how to drop it, or when. But I need to figure it out.

By “it,” I mean the question of telling people I meet that I'm deaf. I’m not exactly like them, I can’t do certain things, and specific accommodations need to be made for me, but I also want to be clear about the abilities that I do have and to avoid making the hearing-loss issue intimidating. It’s a quandary that, post-CI, I still struggle with. How to be clear, straightforward, approachable, fair, but yet realistic?

It’s a tricky challenge with no one-size-fits-all solution. Sometimes, at the outset of a conversation or a relationship, dropping the “d-bomb” simply isn’t necessary – or relevant. When applying for a job or internship position, no way am I going to mention it. Why should I, when it doesn’t at all affect my qualifications or my ability to perform? Starting every introduction email with the disclaimer, “By the way, before you decide how to interact with me in the future, you should know that I am deaf” – that’s not an option. It’s selling myself short. I refuse to let one aspect of my identity define my every interaction. In pursuing my real-world activities, I am a student, a reader and a writer, a hard worker, a participator, et cetera, first. I begin long-distance interactions simply as myself – which of course brings up the interesting question of how my deafness fits into this holistic sense of self-identity. (Messy question; not going there.)

However, when the time for an interview rolls around, or when I find myself about to (gulp) actually meet the individual with whom I’ve been corresponding, I need to decide what to do. In the past, I’ve tried both approaches. I’ve stayed mum about the d-word and showed up hoping that the situation won’t escalate into something unmanageable, and/or that my lipreading skills will be able to save me.

(Sometimes, that’s worked beautifully. Other times, I find myself reeling and backtracking, trying to explain away the minor snags that have suddenly turned into ogres. It depends on the person and the situation, it really does. If I bring up the deafness issue with some people, I look back afterwards and wonder why I made it such a big deal. Why, it really was irrelevant. Other people, however, need to be slammed over the head with it before I feel like I can approach a semblance of my normal ability to function.)

Or, I’ll play my cards straight before I even meet this person face-to-face. Deep breath. Time to let the cat out of the bag. I’m embarrassed every time it happens, for whatever reason. I suppose because I’ve succeeded so far in my life goal of Interacting Normally With Hearing People, and now I’m about to voluntarily set myself apart.

(Interestingly, this approach of prior disclosure is also successful, or not, depending on the person and the situation. Some people, if they’ve been given time to ruminate over “Ohmygoshshe’sdeafIdon’tknowwhattodo,” come to pieces in the actual interaction. They’re more nervous than I am, they overenunciate, they question themselves, and so the entire meeting becomes damage control on my part, trying to reassure said person back to the impression-of-hearing-person-normalcy that they had before. Other people, however, simply appreciate the heads-up. I’ve had several surprising situations arise where I’ll meet someone who unexpectedly knows some sign language or who already has deaf friends or family members – if I hadn’t mentioned my own deafness, I wouldn’t have received the gift, so to speak, of being able to interact on this level.)

The d-bomb is troublesome even in casual interactions. Sometimes I’ll be out and about and meet someone new. He or she is easy to lipread, and so we settle into a comfortable conversation without me ever bringing up my hearing loss at all. I’m enjoying myself when this new hearing companion does something that does not adhere with my version of reality, such as saying “Give me a phone call!” At that moment, of course, I have to break the mold, bring my deafness out of the closet, and say, “Whoa, hold on.” And then, of course, the situation feels awkward because I hadn’t mentioned this gee-probably-rather-important-fact before. Why? It wasn’t necessary. I was comfortable then. Honestly, I forgot.

Or, I’ll indicate to a new friend what I need in a one-on-one interaction, only to see that friend again in a group and realize that he or she really doesn’t get the big picture, doesn’t get that what works in one situation falls apart in another. Then, I’m obliged to speak up and clarify further, but too often it becomes easy to embrace a self-defeatist mindset and let things unfold as they will.

This is a problem: I tend to only mention my deafness when it becomes troublesome. Otherwise, I shove it under the carpet and ignore it. Ignoring it is something I’ve tried to do for a while, and it doesn’t work. Not only is it unfair to me, it’s unfair to the people whom I could construct valuable relationships with, if they only knew what to do. Approaching the hearing world head-on was part of my decision to get a CI, and since then I’ve gotten progressively better at being up-front. (But, but – there are situations where being up-front isn’t necessary! Where I can cope! Where lipreading is fine! Where the CI is amazing! Where I don’t feel the need to let every single person I meet know just how complicated all of this is! Like I said, all of these questions can get tricky.)

There are other questions I’m mulling over, too. For instance, what language should I use? Oftentimes “Hello, my name is Rachel and I’m deaf” doesn’t seem to work. Hearing people don’t know what to do with that word, that entire concept. They’ve often never thought about what it means. I’m as likely to get stares of shock as I am offers of accommodation. One of my deaf friends once advised me to introduce it through subtler means and action-significant words, such as “I lipread” or “I need you to look at me when you talk.” There, is that better? I’ve revealed something important about myself but also given my companion some indication of how he or she should behave. That's more productive and fair, isn't it?

Interestingly, talking about my CI fits into the entire d-bomb dilemma. “So that thing lets you hear?” people will ask me. I hesitate before giving them an answer. I want to explain that hearing isn’t the same as understanding, that it’s a beast of a process, that what I’m capable of now isn’t what I’ll be capable of in six months, or (certainly not!) what I was capable of when I first got switched on. But, for the uninitiated, hearing is a binary: either you can, or you can’t. I don’t want to contribute to misconceptions that, with my CI, I’m able to function one hundred percent normally, but I also don’t want to underemphasize the immense difference it has made in my life. So I sidestep the question a bit. I try to respond to the confused inquiries of “If you have a cochlear implant, then, doesn’t that mean you’re not deaf after all?” I try to address how lipreading and structuring my environment are still very important tools, even though, yes, I technically “can” hear at an almost-normal plane. The concept of balance between two worlds, deaf and hearing, is difficult for many people. And, in a way, the CI has only made it more complicated to explain.

In the end, it’s easy to want to give up. I find that sometimes there’s no way to be consistent about how I present myself and my deafness. But there must be a way to be consistently included, consistently understood, consistently enabled. There must be – just hold on, though, I’m working on it.

Sunday, March 13, 2011

Written While Procrastinating

It's amazing how, even on a gloomy overcast day that's robbed me of an hour's sleep, I'm able to sit listening to this solo piano station on Pandora and automatically feel energized.

It's amazing how, on the good songs, the notes shoot up and something in me rises too, like muscles heaving as I inhale sweet clear air and turn back to my textbooks with greater gusto.

It's amazing how much of this I don't understand, yet how I still gravitate to something just because it "sounds good."

It's even amazing how my sister laughs at me and says, "You used to hate music!"

So "hate" probably isn't the most accurate word to use here. But point conceded. Very, very gladly conceded.

Monday, March 7, 2011

Backtrack

It’s funny that I wrote about destabilizing moments in my last post, because I had one – albeit of a very different sort – this past weekend. Like a total dunce, I forgot to recharge my ensemble of CI batteries on Friday night, and so woke up on Saturday to find that I had a quarter of the juice in each battery, but that was all. Thinking that I’d remember to swap out in the middle of the day before my BTE died completely, I set out.

Of course, lunch came and went without this resolution even crossing my mind, and in the early afternoon the thrum of noise shut off. I had just gotten on a horse five minutes earlier, and the sudden silence was startling. No more birds, no more gravel crunching underfoot, no more wind. Just a deadening hush. My first reaction, I now laugh to say, was of panic. How could I deal with this silence? For a whole ride? And then for the time period afterward until I could get back to my room to switch batteries, a good forty-five minutes in which I would have to walk around and function and – banish the thought – talk to people? I wanted my sound back!

I’ll be honest, I thought about dismounting right there and running for the woods. It was something of an irrational impulse, but then another voice spoke up in my mind. You did this for twenty years, it said. You rode for twenty years, you lived for twenty years, just like this. It was fine then, and it’ll be fine now. Oh, yeah. Who was I, of all people, to doubt my ability to function without sound? Had I changed that much?

Still, as I entered the arena and proceeded with my ride, I felt less confident than usual. I spent more time looking into the faces of the riders I passed, glancing over my shoulder to be sure I hadn’t missed anything. I worried that someone would yell after me, or that something unexpected would happen nearby, and I would not hear. I even felt disconnected from what I was doing because of how I floated along in silence, muffled noise from my hearing aid notwithstanding. In short, my sound-acclimatized brain was embracing some of the fears that lay hearing people have about deafness.

When I dismounted, I passed some people in the barn and found that I suddenly did not want to talk to them. It struck me how hard it was to understand based only on lipreading and this indistinct-hearing-aid muddle. I finished up quickly, and went to meet a friend before walking back to my room together. Talking with him, my head reeled. I had to squint my eyes and focus; no sound cues were there to help me out. When I spoke, my tongue seemed to slide around in my mouth. I suddenly did not have any auditory feedback to track how I was articulating my words, and the edges of my pronunciation seemed to soften and turn to mush. I do not know how to describe this sensation: I literally could not find my verbal footing. Without my CI, my confidence, my situational awareness, my conversational skills, even the way I talked all seemed to crumble. In my mind, I could imagine what the world ought to have sounded like, but without direct auditory stimulation those imaginings became irrelevant. During those two or so hours before I replaced the battery and everything was fine again, I felt swept out to sea.

I won’t expand on this experience any farther. It’s something I’ll have to reflect on. All I have to say is: wow. My brain certainly has rewired itself, and I am stronger for it. In ways I almost have not realized.

Friday, March 4, 2011

When the Ground Sways Beneath Your Feet

I stumbled across this video from Advanced Bionics today and thought I'd post it. It fits into the lines of what I've written on this blog before, but there's still no getting over how incredibly sophisticated this whole CI concept is. And the best part: it sounds great!



I've been having a lot of moments lately (okay, maybe all along) of surprising complexity, destabilizing moments where it seems like my brain, under the surface, is working on a new breakthrough. Or when it seems like the meaning of something is just within reach, although I can only brush it with my fingertips. It'll happen quite suddenly: I'll be walking and talking with a friend when I notice that the sound of her voice is different than before, that it's making me gasp with its smoothness and resonance, even if I can't say exactly how or why it's changed. I'll get distracted by its rich ebb and flow, like little green tendrils are starting to blossom beneath the previously barren surface of syllabic patterns. Those are delicate roots that don't funnel down very far right now, but I can almost physically feel them growing. So, in my mind I'll gasp and then realize that I'm not paying attention to what my friend is actually saying. Why would I, when her voice by itself sounds so wonderful and strange? Earth to Rachel. Hello there, lipreading.

Speaking of which, I still do lipread extensively - but, when it's quiet, I've been having more and more moments where I'll turn half away or not quite see the shape of a word on someone's lips. Instead of panicking, I'll feel my brain gently slide in and hand the phrase to me. Oh. Thanks. That wasn't a big deal. A lot of times it's only afterwards that I realize I wasn't seeing, but hearing. My auditory therapist commented on this the other day - I'm not asking for as much repetition with her as I did during the summer, I'm more confident and self-possessed and more active in the conversation. This is something I might not have noticed on my own, but the feedback is a great confidence boost. Upon further reflection, it's true. When I'm not fried from processing all this new information, I have more room inside my own head to think.

In those quiet situations, there is a constant give-and-take between sound and sight, the two of them uncertain allies (and sound, the newcomer, often shuffling into the corner feeling unwelcome) but gradually learning to work together. But in noise it's a different story. Then, sound will rush headlong into the path of chaos while sight pulls back, disgruntled, and attempts to restore proper balance to my brain. With more small noises entering my stream of consciousness from farther away, this tug o'war is something that will continue for a while. I've found that I have a very hard time taking exams now because of the shuffling, rustling, coughing, creaking noises going on through the hush, whereas before the CI I was always perfectly content in my mental bubble of silence. I stormed out of my room the other night wondering what the heck the ruckus in my house was, only to find three people having a table conversation (okay, a lively conversation, but still, only a conversation) three rooms and two closed doors away. Really? It was hard to be upset when I realized I'd actually heard that. And heard it so loudly. Sight keeps wanting to seize sound's head and bang it on the table (okay, the rest of my body does too - it's a collective mutiny) but sound keeps holding its own, becoming bolder than ever. And, of course, more useful.

All of this, to be honest, has set me on the path of considering a second CI. There are frequent moments now where I have to check to be sure my hearing aid is still working, that side of my head feels like such a dead zone. But that's something I'll write about another time.

Sunday, February 6, 2011

Riders, Lend Me Your Ears

This is going to be a quick post, because I really should be studying right now...

But huge CI moment for me this weekend, as I competed for Stanford's equestrian team in a home horse show. For the first time ever, the PA system was making sense to me during the equitation on the flat classes, when I stood by the back gate within clear listening range. (I did have a similar experience a few weekends ago at an away show, but the volume and sound quality in that arena were so cruddy that I really didn't get much more than an isolated word or two, and even then I might have been making that up.) Getting ready for my class yesterday and earlier today, I watched the other riders in the arena and listened to the announcer give the verbal commands for which gait they should display next, and found my stomach doing little lighthearted flips. Because, almost every single time, I got it!

"Riders, to the rising trot."

"Sitting trot, please."

"Riders, canter please."

"Riders, please walk and line up in the center of the ring."

"Riders, drop your stirrups."

You get the point. I even got the numbers being announced sometimes, when there wasn't too much background noise or cheering from the crowd. Now, I've competed in horse shows for much of my life, and this has me feeling so giddy. I used to be terrified - absolutely terrified - of flat classes because of my fear of (and actual experience with) missing the announcer's commands and performing much worse than my best. I used to get unbearably tense before every such class, and would often ride abominably because of my preoccupation with what the other riders were doing - was I doing it right? What was next? When would the next transition come? Would it catch me off-guard?

Today - entirely different story. Although my auditory processing wasn't as stellar when I was on the horse rather than standing and watching, I did pick up a few things during my own class. All this made me feel like running and jumping up and down and telling my friends and teammates, "I hear it, I understand it! Canter! Canter!" (A note: I restrained myself. Flat class announcing is far too mundane for such enthusiasm.)

Granted, all of these commands tend to be rather redundant. But in terms of a closed set that's actually applicable to an area of my life, whoo-hoo!

Tuesday, February 1, 2011

Auditory Memory and Other Ramblings

Auditory therapy, session two. Take-away points: right now it's all about building confidence and auditory memory. (Nothing new. That mental sound dictionary is going to be years in the making.) And it's about making myself stretch, too, defining a set that's neither too open nor too closed. I have to flex my listening muscles, so to speak, and make myself work hard without becoming frustrated or feeling like the answer is out of reach. It's a tricky balance. So how do I push those boundaries? This week we tried several things. Listening and selecting sentences at different volumes and distances, defining a category and then having me discern open-ended statements about it, listening to sets of words and determining which one did not belong. That brain of mine is still reluctant to listen, to put its faith in something previously so unknown, but the more I push it the more it cooperates.

Also, I need to put aside my fear of incomprehension. It's a bit ironic that lack of communication is probably my biggest fear, yet it's something with which I have a tremendous amount of experience. Over the years I've come up with a number of coping mechanisms for situations when I'm just not getting it. My brain has gotten good at glossing things over, at filling in the blanks when it can and trying to cope when it can't. Up to this point, that puzzle-solving process has mainly applied to lipreading, but now it applies to listening too. While deciphering the speech sounds I hear, I need to make myself release some of my inner tension. I'm going into overdrive, piecing together sounds in an attempt to extract a statement that makes sense, and worrying when none of it fits - but, when things do click, it often happens suddenly. No analysis involved: I know what I'm hearing! That's the goal, moving forward - to ask myself, am I listening with my ears or with my brain? That analytical mind of mine has always been a huge asset, but maybe one day it'll be a bit less necessary, or a bit less overburdened, as more of the pieces fall into place. What a great thought.

And, finally - this may be a bit redundant, but I keep feeling stunned at the texture of the world with sound in it. Seven months has not distilled my private sense of wonder. There's a bird building a nest outside my window, and I hear it right now as I type. I've been noticing new types of bird calls around campus, too, and other sounds keep shadowing me, feeling more and more like good friends. The whistling of the wind, the squeal of my bike tires, overlapping machinery, people's voices carrying over from the most improbable places. Hard work aside, all of this is so, so amazing.

Friday, January 28, 2011

You Know It's Loud When...

The place where I live in college is big on parties. Almost every night the sounds of music, commotion, and people talking rushes through my wall into my room. I cannot escape (or, rather, refuse to escape), but it's a good exercise in filtering out irrelevant noise.

But last night - someone's twenty-second birthday. The house is packed and rather drunken. I've had a long week and am off to bed. I walk down the hall, past hordes of people squished together, sloshing their ubiquitous red solo cups. I am about to wash my face in the bathroom and have taken off both my hearing aid and CI. I float in silence. In that state of total deafness, I sink into my usual detachment and amused objectivity. That voice in my mind speaks up wryly; I wonder if any of these people realize how strange they appear from the outside, with the sound turned off, mouths gaping and faces contorted into improbable expressions. I want to laugh, even as I find it slightly grotesque. The uniqueness of my version of reality accompanies me as I weave through the crowd, not caring for any of it now that I cannot hear.

But I can hear, that's what disturbs me most: the music is so loud. It's thundering through my body, the beat sharply defined and harsh. And, in my right ear, in my non-CI ear that still has some residual hearing left, I can hear faint, far-away thrums. They slam into my head like popping, shocking my brain with their brute physical force. (Not so in the left ear, which remains eerily silent, so different from when magnet fastens onto skull - wow, I have become completely dependent on that apparatus.) A group beside me shouts, the song changes. And I hear it. If it's that penetrating and noisy, that even my deafness cannot shut it out, how can it be possible that the people around me are not going deaf themselves?

Except I know they must be. This is too much noise for it to be otherwise. I am reminded of a conversation I had with my auditory therapist earlier this week: just wait a few years. Soon more and more of them will be struggling to hear, to keep up, to understand, and I'll find myself better equipped to cope with hearing loss than any of them. Now, that's ironic.

And, yes, the silence as an escape is nice, but embracing it for the sake of 120 decibels of a pop song? Not worth it. I keep feeling troubled by what hearing people do to themselves. Breathe. Turn the volume down, for your own sake.