Astoundingly, I graduate college in less than two weeks, and along with that milestone I've been spending some time reflecting on my undergraduate years. It's just that time again, with sunshine and final papers and another year ending. College has been quite the ride, and in many ways it's been far better than I could have imagined. When I came to Stanford, I really could not have conceived of all the places I would go, classes I would take, things I would see, and people I would meet. I couldn't have imagined myself taking on some of the challenges of the last four years, much less experiencing some of the joys I have encountered. (Hearing among them!)
Yet, at the same time, I reflect on the last four years and get a disturbing, bittersweet feeling of missed opportunities and not-quite-fulfilled desires. College has been more than I could have imagined, but in some ways it has been different. As a deaf person who grew up completely immersed in the hearing world and who was mainstreamed since kindergarten, I always knew I would go to an all-hearing university. Enrolling somewhere else like Gallaudet, or not going to college at all, were not options. Yet I've found that facing the success-driven world of Stanford, as a person with a disability, has been challenging in ways that I, at eighteen, did not fully anticipate. Stanford students speak of a campus culture characterized by "Stanford duck syndrome," in which sunny facades of achievement and, yes, effortlessness mask the constantly paddling feet of hard work and even private turmoil. It's a campus where it can be difficult not to want to appear perfect, casual, and at ease.
Being deaf at Stanford has been hard. I'll be blunt: at certain times, it's been lonely. The overall experience has gotten far better than during my freshman year, as I've learned more about myself and developed strategies to navigate an all-hearing world. Doubtlessly the CI has contributed to that rising self-confidence: the conviction it took to want to hear, and to begin to hear more than ever before, has encouraged me to open up to my world, to take risks, and not to discount myself based on longstanding notions of what I can and cannot do. It's made several things in my life much easier, and some of the experiences I've had have been so empowering. But, as I knew when I started this journey two years ago, having a cochlear implant has not made me a hearing person. It never will. It has not made me one of those socially easeful, communicative, listening and talking and wisecracking and responding people that I feel like I see on campus every day. In some ways (despite all of the soaring highs), college has not been what I wanted. And most of that has to do with not being able to engage with my peers and friend groups and teammates and acquaintances in the way I wanted.
It's difficult to describe the experience of being surrounded by such bright and amazing people and feeling unable to communicate fully with them. Lipreading is truly a lifesaver. Listening has made lipreading far easier. I've surprised myself by how skillfully I can handle one-on-one interactions in particular, by cherry-picking friends who are easy to lipread and often going all day in bliss and without much feeling of inherent limitation. But those strategies don't conquer all. What about the group dinners, where I'm always several beats behind if I understand at all? What about the interesting people I've met whose accents make them nearly impossible to talk with? The on-campus speaker events and plays and panel discussions that friends invite me to at the last minute, where I must decline because I cannot request an interpreter? The parties in dark rooms with blaring music where communication is impossible and all I want to do is melt into the floor? The dorm spirit and camaraderie, which some part of me has irrationally resented only because I've felt excluded? All of these are parts of college life. They're parts that, to some extent, I've missed. I've seen them happen around me, but for four years I've felt like I've been spectating on forms shrouded by an opaque curtain. While I will graduate in two weeks with an immense sense of pride, joy, and accomplishment, I'm also a little haunted by things like this, things that embody what Stanford means to other people that it has never meant to me.
Part of this bittersweet feeling, I won't deny, might be my fault. I tend to be shy, reticent, and even aloof. Too often I retreat and "suck it up" rather than confront. I do want my friends to sign (sometimes desperately), but I rarely sign myself, and I'm not very good at flaunting my cultural Deafness, whatever there is of it. I haven't always made myself crystal clear on what I need and want. That is not necessarily the best way to deal with deafness, which is often such an invisible disability in any case -- so much so, that it really might take an exuberant personality to jump up and down with neon lights flashing and sign language guns ablaze in order to prompt the hearing world to engage and "get it." I'm not that person, or at least I haven't been.
Regardless, life is what it is, and I'm doing my best to let this troubled feeling go, of exclusion and of having passed through my undergrad years at Stanford while letting (or watching) so much of it slip through the cracks. I love Stanford, and I couldn't say enough about the things I love about Stanford -- I'm more than thrilled to be coterming at the Farm next year. And sometimes a dose of perspective, and not comparing directly to hearing people, is in order. I was in a cafe three days ago, studying with a friend, when a stranger approached the table where we sat. Being me, I think I noticed as soon as I saw him that he had hearing aids. My chest rose slightly. He didn't speak, but placed an index card down on the table before us. "I am hearing impaired and out of work..." I read, but didn't need to see any more. I understood what was happening here, or part of it. And I was excited to sign, here in Palo Alto where it felt so unexpected. You're deaf? I signed to him.
He took a step back. My friend and I had been chatting enthusiastically five seconds earlier; my hair was down and my CI was out of sight; I realized I must have looked just like a hearing person. Yes, I'm deaf, he signed back, his eyes widening as he looked at me. You too?
Yes, me too.
Born deaf?
Yes.
Not hard-of-hearing? And you speak well, like a hearing person? He looked at my friend, as if wanting her to pass judgment. Are you in school?
I answered yes; yes, for the most part; and that I went to Stanford. We chatted a little more. Throughout, I could see that part of him didn't believe me -- didn't believe that I was deaf. I was on the verge of taking my CI off and showing him. After getting a bit of his life story and exchanging a few parting pleasantries, he told me, Stanford. My deepest congratulations. When you graduate, Deaf people all around will give you their respect, for doing something like that. (This is a rough translation.) I felt like protesting, saying that Stanford wasn't all that out of reach, or at least shouldn't be, but in reality I was floored. And the encounter, so close to my graduation, made me pause and reflect.
As ill-at-ease as I've been feeling about some aspects of the last four years, I can't call myself anything but blessed. Unexpectedly so. Yes, college has been hard, and of course the hearing world doesn't stop after Stanford. The challenges of living with a hearing loss, as diverse as they are, will go on. But, those aside, I'm just so, so fortunate to have had the opportunities that I've had. From supportive parents to speech therapists and audiologists, to wonderful interpreters and engaging teachers and professors, to amazing close friends... the list goes on. May I never lose that perspective, even when I'm left wanting more.
Also, may the next four years be even better than the last.
Wednesday, June 6, 2012
Friday, June 1, 2012
"Duh." Or Not.
Funny how fast time flies. Today I had my two-year follow-up appointment with my CI surgeon -- just routine, to be sure I'm still doing well with this piece of metal in my head. How much has changed since I sat in that office two years ago, calm on the surface but really struggling with a mess of anxieties, hopes, and fears. As I prepare to graduate from college in a few weeks, it's so nice to reflect on my progress if only in that one area of my life. Everything is looking fine, so onward!
Now, I don't have that much to say about the appointment itself, save for the (reiterated) fact that this hearing thing is still very much an ongoing process. But I still find something irksome about the way doctors' offices -- even the ones that specialize in hearing and hearing loss! -- interact with deaf and hard-of-hearing people. I noticed this time and time again during the days immediately pre-CI, in which my nervousness about my upcoming surgery was slightly exacerbated by some people's carelessness about communicating with me, and unfortunately it's still there. My surgeon is wonderful and a great communicator (by which I mean very straightforward and very aware of his own clarity and articulation), but I can't say the same for everyone else.
First of all, the waiting room. I checked in with the receptionist, sat down (facing the door, as always, so I could see and lipread anyone who approached), and realized anew the absurdity of having an audiology clinic in a building where none of the nurses give any sort of visual signal to alert patients that their name is being called. They come to the door, open it, and then say the patient's name in a quiet and unobtrusive voice, one that I hardly heard over the scattered conversations and the CNN broadcast in the room. Then, if there's no immediate response, they shrug and walk away (this happened once or twice for patients who were seemingly not there or not answering to their names at that moment). I sat fiddling for twenty minutes, and a few times thought a nurse might, just maybe, have said "Rachel." I got up and asked, only to have them shake their heads at me. I consider myself very situationally aware for a deaf person, and I know how to place myself so I can watch when listening might fail me, but it's not fair to enter a room with people who might have any sort of hearing loss and expect verbal words alone to suffice. How about nurses who know how to fingerspell patients' names as they come in, or at least wave or give some other kind of signal? It might not always be necessary, but it'd be more accessible.
Next, one-on-one interactions. I walked back into the exam room. My nurse sat me down to gather basic information and enter it into the computer, and I noticed immediately that she had an accent. I was placing my bag down on the floor when I heard her speak, and the vowels sounded a little off, a little different. I turned back to her and asked her to repeat herself, a little bothered that she'd started asking me questions when I wasn't looking at her. (Hello? Post-CI follow up? With a person who has a hearing loss? And lipreads? Should be fairly obvious what to do here.) She rattled off the question again, very rapidly and not making much of an effort to look me in the face. I still didn't understand what she'd said; I was still hung up on the accent. After one or two more tries, she laid down her pen and very clearly said, "Do you need an interpreter?"
"No," I told her. "I'm fine. Could you please speak a little more clearly?" That time, she did look me in the eye and speak a little more slowly (maybe wondering after my actual powers of hearing/intelligence), I got the question, and we moved on.
The whole interaction lasted less than two minutes, but it left me miffed. Having hearing people rattle off questions without looking at me is something I've grown used to, but for goodness' sake this was an audiology clinic. Where employees should know better. Where people with hearing losses, some of whom doubtlessly must lipread, come in every day. Frankly, copping out and asking me if I needed an interpreter, without first making a clear effort to be understandable, didn't show as much consideration as I would have liked. Communication is a two-way street. If you know that the patient you're talking to has a hearing loss, and if it's your job to interact with other such patients, at least try to meet that person halfway before calling the "authorities" or chucking her off to someone else. I've long had mixed feelings about interpreters being a barrier between me and direct communication, but it doesn't help when hearing people give up on the cooperative communicative venture so easily. A little more personal responsibility for making communication happen here, please.
This post isn't meant to be anything besides a critique of the bizarreness of the hearing status quo and how it relates to deaf/hard-of-hearing people. But it goes to show that things I sometimes think are "duh" -- and that should be "duh" for professionals working with hearing loss -- many times aren't. I'm thinking of the social (rather than medical) model of disability here, in which accessibility barriers arise not from an individual's physical disability but from the conventions of the surrounding world. I can be perfectly coherent and communicative; I just need to be met halfway sometimes. And, honestly, who among us doesn't?
Anyway. My two-year remapping is forthcoming (in a little less than two weeks), and I'm very excited. It's always interesting to see how the sound quality changes after a remapping, but the element I'm by far most anticipating is finally getting my hands on ClearVoice, Advanced Bionics' new software to (hypothetically) make conversations, human voices, and other pertinent sounds easier to follow in background noise. I'm not expecting it to be a total game-changer, but it'll be fun to try. In addition, I'm hoping the remapping will address a few subtle gaps that have arisen in my hearing spectrum in recent weeks. Only during auditory therapy do I really notice them, but fingers crossed that the new program will be able to fiddle with those issues. Until then!
Thursday, May 17, 2012
"Building the Musical Muscle"
A friend recently sent me this TED talk by Charles Limb about cochlear implants and music. At the very least, it's an informative look into the complex acoustics of music and how they might translate into CI electrode-speak.
http://www.ted.com/talks/charles_limb_building_the_musical_muscle.html
Now, I won't say too much about what I perceive to be a slightly condescending note in Limb's attitude toward deaf people. (Or perhaps "condescending" isn't the right word, but it's - something. I suspect those who know me well will sense it, too.) I also won't say too much about some disagreements I have with some of the subjective-perception arguments he makes. As a cochlear implant user, the segments Limb describes as sadly, horribly "identical" for anyone with a CI... actually are different for me, too. I can tell a violin from a trumpet. I can identify the flattened state of the altered melodies he plays, even though I can't describe it much further than that. And, although I agree with the assessment that music rehabilitation is something that's left out of CI rehab in general (I myself have hardly done any), remember that this is me speaking as a profoundly prelingually deaf individual. That is, an individual with no auditory memory at all, no real prior experience with music from which to base those auditory judgments. And all CI users are different.
Those contentions aside, Limb's main point is correct: music does not sound the same for CI users as for typically hearing people. (Does anything? No.) It's a fact of where the technology and the field is right now: a cochlear implant, while absolutely amazing in what it is able to accomplish, is nowhere near as sophisticated as natural hearing. And, whatever we do know about the auditory system, it pales in comparison with the complexity of neuroscience. A good point to keep in mind when asking what CI users can and cannot hear! Defining precise "hearing," and attaining it, is such an elusive game. Music, I confess, does not sound amazing to me. It's there, for sure. It's present. It's noise with more shape and function and reason than it used to have, though it's far more nebulous than speech. I frustrate myself trying to articulate, to pinpoint exactly what it "means," in the same way that a word can "mean" something. It's decent, and at the most it's something I can appreciate.
But always the question: What do these insights mean for me? How do I respond to this self-perception of my sensory insufficiency, of the inaccessible fragments of this rich world? While I do hope that researchers progress with both technology and rehabilitative strategies, the fact is I'm not going to stand before the abstract idea of music (for that's what it is to me still, something abstract) like Tantalus ever striving after a sip of that receding water. I'd like to keep listening and learning, but I refuse to dwell on irrevocable circumstance. I'm thankful for the other beauties there are in this world - a world, I assure you, very far from Tartarus, however excited I might be for future technological advancements.
http://www.ted.com/talks/charles_limb_building_the_musical_muscle.html
Now, I won't say too much about what I perceive to be a slightly condescending note in Limb's attitude toward deaf people. (Or perhaps "condescending" isn't the right word, but it's - something. I suspect those who know me well will sense it, too.) I also won't say too much about some disagreements I have with some of the subjective-perception arguments he makes. As a cochlear implant user, the segments Limb describes as sadly, horribly "identical" for anyone with a CI... actually are different for me, too. I can tell a violin from a trumpet. I can identify the flattened state of the altered melodies he plays, even though I can't describe it much further than that. And, although I agree with the assessment that music rehabilitation is something that's left out of CI rehab in general (I myself have hardly done any), remember that this is me speaking as a profoundly prelingually deaf individual. That is, an individual with no auditory memory at all, no real prior experience with music from which to base those auditory judgments. And all CI users are different.
Those contentions aside, Limb's main point is correct: music does not sound the same for CI users as for typically hearing people. (Does anything? No.) It's a fact of where the technology and the field is right now: a cochlear implant, while absolutely amazing in what it is able to accomplish, is nowhere near as sophisticated as natural hearing. And, whatever we do know about the auditory system, it pales in comparison with the complexity of neuroscience. A good point to keep in mind when asking what CI users can and cannot hear! Defining precise "hearing," and attaining it, is such an elusive game. Music, I confess, does not sound amazing to me. It's there, for sure. It's present. It's noise with more shape and function and reason than it used to have, though it's far more nebulous than speech. I frustrate myself trying to articulate, to pinpoint exactly what it "means," in the same way that a word can "mean" something. It's decent, and at the most it's something I can appreciate.
But always the question: What do these insights mean for me? How do I respond to this self-perception of my sensory insufficiency, of the inaccessible fragments of this rich world? While I do hope that researchers progress with both technology and rehabilitative strategies, the fact is I'm not going to stand before the abstract idea of music (for that's what it is to me still, something abstract) like Tantalus ever striving after a sip of that receding water. I'd like to keep listening and learning, but I refuse to dwell on irrevocable circumstance. I'm thankful for the other beauties there are in this world - a world, I assure you, very far from Tartarus, however excited I might be for future technological advancements.
Monday, May 7, 2012
Listening: A Collaborative Effort
So I should be working on my honors thesis right now (a major contributor to my silence as of late), but this was too cool not to share. This morning I went to my auditory therapy session, which as usual took on the role of helping me feel on track with, you know, actually improving with my listening skills. Too often I feel like the complex world of hearing (the world that hearing people live in, with background noise and multiple speakers and fast talkers and just too much speed and noise) leaves me floored and insufficient. Returning to basics shows that I'm doing better than I think.
We started out with a set of exercises we've done before, with completely open-set sentence discrimination. This is a level I've progressed to in the last few months, and considering everything it's an exciting milestone, even if it can be frustrating sometimes. (The sentences aren't complicated, but are more along the lines of "the sun shines during the day and the moon shines at night" or "you floss your teeth to get pieces of food that your toothbrush can't reach." They contain everyday objects and phenomena, but their subject matter could be coming from absolutely anywhere at all.)
First go: CI only, hearing aid turned off. I sat in my chair, admittedly tense as the words flooded past. As we talked about afterwards, the start of each sentence was like bracing myself for a wave. As it rushed by, I tried to stick my fingers down in the murky fluid, to grab onto passing fragments of water, seaweed, shells, sand - anything that would give me a clue to the overall meaning. This extended simile aside, I felt like I usually do during these exercises: like I was trying to glue together shattered pieces of glass. Isolated words jumped out at me, words like "teeth" and "sun," but most times it took many repetitions and much patience to get the whole thing. My analytical mind kicked into gear: noun here, verb there, that was a prepositional phrase. More often than not I'd emerge with the skeleton of the sentence, its overall structure, before I could flesh out what it meant.
Over several taxing minutes, we worked through ten sentences. Overall, not a bad effort, but not great either. I felt drained; there seemed like no way to prime my mind to sort through this open-set material, time after time. But now my therapist suggested that we try something else: turn my hearing aid on. Listen to ten more sentences with both, and see what happened.
Okay, why not? I've long known that listening with both ears is easier for me than listening with one, even though the sound input that I get from my hearing aid is far less than what I get from my CI. I expected that the results would be marginally better - a little easier, but not dramatically.
Here's what happened. The sentences, as random as before, flowed past - and time slowed. That's the immediate subjective description that comes to mind. With two ears working together, no longer was I crashing through that very fast-traveling wave, then gasping in retrospect and trying to figure out what I had heard. Time no longer split that way, with present perception floundering and auditory memory going into overdrive, juggling the present and the past in pursuit of meaning. Instead, I had the distinct experience of hearing and understanding the words in real time. It wasn't perfect, but the difference from trial #1 was astonishing. I heard, I understood, I moved on. I waited for the words to come to me instead of bracing myself for their impact. My hearing aid - my slivers of natural hearing, which in all honesty still sound smoother and more acoustically rich than the sometimes-harsh dynamism of the CI - made a world of difference.
Now, how could this be? I walked away thinking. It certainly never happened before with two hearing aids. When I take off my CI and listen with my hearing aid alone, it sounds awful. Squashed and diminished and flat. But when the two work together... wow. I was floored. I'd noticed the effect before, but not like this. What was hard for both ears separately (well, impossible for hearing aid, doable but challenging for CI) suddenly became relatively easy. How could my brain be so good at piecing together two very different ears to produce something cohesive and understandable? Where did it learn how to do that? How does something like that even work?
Now I think I can imagine what hearing people hear: that sort of dynamism (CI) combined with the smooth, lovely quality of normal hearing (HA). However my brain is combining those two elements, it's working. SO COOL.
We started out with a set of exercises we've done before, with completely open-set sentence discrimination. This is a level I've progressed to in the last few months, and considering everything it's an exciting milestone, even if it can be frustrating sometimes. (The sentences aren't complicated, but are more along the lines of "the sun shines during the day and the moon shines at night" or "you floss your teeth to get pieces of food that your toothbrush can't reach." They contain everyday objects and phenomena, but their subject matter could be coming from absolutely anywhere at all.)
First go: CI only, hearing aid turned off. I sat in my chair, admittedly tense as the words flooded past. As we talked about afterwards, the start of each sentence was like bracing myself for a wave. As it rushed by, I tried to stick my fingers down in the murky fluid, to grab onto passing fragments of water, seaweed, shells, sand - anything that would give me a clue to the overall meaning. This extended simile aside, I felt like I usually do during these exercises: like I was trying to glue together shattered pieces of glass. Isolated words jumped out at me, words like "teeth" and "sun," but most times it took many repetitions and much patience to get the whole thing. My analytical mind kicked into gear: noun here, verb there, that was a prepositional phrase. More often than not I'd emerge with the skeleton of the sentence, its overall structure, before I could flesh out what it meant.
Over several taxing minutes, we worked through ten sentences. Overall, not a bad effort, but not great either. I felt drained; there seemed like no way to prime my mind to sort through this open-set material, time after time. But now my therapist suggested that we try something else: turn my hearing aid on. Listen to ten more sentences with both, and see what happened.
Okay, why not? I've long known that listening with both ears is easier for me than listening with one, even though the sound input that I get from my hearing aid is far less than what I get from my CI. I expected that the results would be marginally better - a little easier, but not dramatically.
Here's what happened. The sentences, as random as before, flowed past - and time slowed. That's the immediate subjective description that comes to mind. With two ears working together, no longer was I crashing through that very fast-traveling wave, then gasping in retrospect and trying to figure out what I had heard. Time no longer split that way, with present perception floundering and auditory memory going into overdrive, juggling the present and the past in pursuit of meaning. Instead, I had the distinct experience of hearing and understanding the words in real time. It wasn't perfect, but the difference from trial #1 was astonishing. I heard, I understood, I moved on. I waited for the words to come to me instead of bracing myself for their impact. My hearing aid - my slivers of natural hearing, which in all honesty still sound smoother and more acoustically rich than the sometimes-harsh dynamism of the CI - made a world of difference.
Now, how could this be? I walked away thinking. It certainly never happened before with two hearing aids. When I take off my CI and listen with my hearing aid alone, it sounds awful. Squashed and diminished and flat. But when the two work together... wow. I was floored. I'd noticed the effect before, but not like this. What was hard for both ears separately (well, impossible for hearing aid, doable but challenging for CI) suddenly became relatively easy. How could my brain be so good at piecing together two very different ears to produce something cohesive and understandable? Where did it learn how to do that? How does something like that even work?
Now I think I can imagine what hearing people hear: that sort of dynamism (CI) combined with the smooth, lovely quality of normal hearing (HA). However my brain is combining those two elements, it's working. SO COOL.
Tuesday, March 20, 2012
Looking Back on Goals - Again
Lately I've been growing frustrated (again) by the fact that my listening progress doesn't feel like it's moving as fast as I'd like it to. This perspective challenge has been present all along with the CI (where am I going? how have I improved?), but it arises and recurs in waves. There are days in which I feel unbelievably optimistic, and others in which what I want hovers out of reach. About to graduate from college, I look out at the "real world" and all the things in it and often feel intimidated, since communication can still seem like a barrier. Of course, success is possible anyway, and I've gotten better at getting creative in the last few years, but the fact remains that some things are still not straightforward.
Yet, this morning, I had a session with my auditory therapist in which I voiced some of the above insecurities. In controlled situations, the listening progress is there, but it often feels slow. We talked a bit, and then she flipped back through her file and pulled out a piece of paper. On it were written my goals for the CI from a year ago, or maybe a year and a half. They were as follows:
1. Recognize more individual words based on sound alone
A million times yes. It really depends on the good old auditory memory, but the fact that I can now hear a word and know what it is, based on listening, is amazing.
2. Be able to have base-level conversations in quiet with a familiar voice
Yes. Although this often doesn't apply to the real world, I've known for a while that if I sit inside with either of my parents or someone else familiar, I will be able to hear, understand, and respond to the things they say to me.
3. Hear and recognize more high-frequency sounds than I used to
Definitely yes. It's astonishing, how much I've started taking them for granted.
4. Encounter fewer situations in which people ask me, "Did you hear that noise?" and I reply, "No."
Yes! I can't remember the last time this happened. More often, it's the reverse: people ask me if I heard that noise and I internally tilt my head and laugh and then say, "Yeah, I did." Like, duh, my CI is awesome. Or I actually do tilt my head and listen and say, "Oh! Yes! That's a cool new noise!"
5. Feel more comfortable and confident in a group
This is probably the only one for which my answer is "not so much." There are just too many variables, although various strategies have helped me cope better in groups than I used to - including knowing my limits and being able to engage and disengage as necessary.
Number five notwithstanding, these are all things that I found unimaginable two years ago. Looking back on that progress is empowering, even if, as my therapist pointed out, of course the goal that I'm always subconsciously thinking of, that I'm seeing around me, that I'm wanting each day, is to sit at a table with a group of smart, engaging, talkative hearing friends and understand their rapid-fire conversations and join in like a pro. But sometimes it's better to measure progress from the ground up. These are some hefty peaks scaled.
Reality check: achieved. For now.
Yet, this morning, I had a session with my auditory therapist in which I voiced some of the above insecurities. In controlled situations, the listening progress is there, but it often feels slow. We talked a bit, and then she flipped back through her file and pulled out a piece of paper. On it were written my goals for the CI from a year ago, or maybe a year and a half. They were as follows:
1. Recognize more individual words based on sound alone
A million times yes. It really depends on the good old auditory memory, but the fact that I can now hear a word and know what it is, based on listening, is amazing.
2. Be able to have base-level conversations in quiet with a familiar voice
Yes. Although this often doesn't apply to the real world, I've known for a while that if I sit inside with either of my parents or someone else familiar, I will be able to hear, understand, and respond to the things they say to me.
3. Hear and recognize more high-frequency sounds than I used to
Definitely yes. It's astonishing, how much I've started taking them for granted.
4. Encounter fewer situations in which people ask me, "Did you hear that noise?" and I reply, "No."
Yes! I can't remember the last time this happened. More often, it's the reverse: people ask me if I heard that noise and I internally tilt my head and laugh and then say, "Yeah, I did." Like, duh, my CI is awesome. Or I actually do tilt my head and listen and say, "Oh! Yes! That's a cool new noise!"
5. Feel more comfortable and confident in a group
This is probably the only one for which my answer is "not so much." There are just too many variables, although various strategies have helped me cope better in groups than I used to - including knowing my limits and being able to engage and disengage as necessary.
Number five notwithstanding, these are all things that I found unimaginable two years ago. Looking back on that progress is empowering, even if, as my therapist pointed out, of course the goal that I'm always subconsciously thinking of, that I'm seeing around me, that I'm wanting each day, is to sit at a table with a group of smart, engaging, talkative hearing friends and understand their rapid-fire conversations and join in like a pro. But sometimes it's better to measure progress from the ground up. These are some hefty peaks scaled.
Reality check: achieved. For now.
Sunday, March 18, 2012
Girl Walks Into a Bar...
Glass windows. Line of people outside, huddled under the awning out of the rain. Damp shirts and moisture-splattered jackets. What, we're going in here? Yes. Yes? Yes, do you want a drink? A drink? Um... Through the door. People smash in on all sides. Bodies everywhere. I need to step back, their faces seem pressed up against mine.
Oh, there you all are. I lost sight of you in the dim light. No, I don't think I'll put my jacket down. I'm fine. Is there music on, the way some of you keep swaying back and forth? No room to sway, but you're doing it anyway. But all I hear is the constant din. Noise, that's the only word to describe it, just noise. Some people at a booth are having burgers and fries, and I feel like I'm practically sitting in their food. I'm sorry, I'm sorry, but no one apologizes in a place like this. I'm in all of your laps. The group bunches so close together we might as well all be standing in a closet. I wring my neck just to see the person standing next to me. The conversation spins faster and faster.
Laughter. Voices. All of it smashed together, a processed, ground-beef patty of noise. I can't pitch my voice just right to be heard over it. Assuming that it is possible to hear anything through this - I can't hear myself, can't hear anyone, and it astonishes me that anyone can. Oh hi, how are you. Every time I say something, you say what and I talk louder, practically shouting, and you tilt your head to hear me. I'm talking into the hole in your head, into your head and the pinna of your ear, not into your face, and it bothers me. Look at me. Watch my face. Someone asks if I want something - oh, it's food, some kind of food - and my hand raises in the sign for food and drink. Are you getting anything to eat or drink? But you don't know sign. Shoot. I shout again. How much easier this would be if I could just fingerspell and have you U-N-D-E-R-S-T-A-N-D. But I can't see anyway. Touche.
Neon signs. Television blaring. Advertisement swoops up for NCAA March Madness. Barista swoops in and out with drinks. Walls are a rose pink. I stare at the artwork. Most of it seems a touch raunchy, advertising drinks with suggestive names. Friends lean in past me to talk to each other. I've just shaken the hand of a guy whose name I keep missing. He's cute enough, but - no, never mind, not if he talks like that. Not a snowball's chance of understanding him. I'm weaving through the sheets of people. All of these vertical bodies, no room to be horizontal. My eyes hurt, and it feels like I'm squinting through smoke, but there's no smoke in here, only darkness. Yet the way everyone else talks seems so natural. What? Repeat that, please? Um, yeah. Okay. Everyone's laughing. What did you say? Never mind.
And, finally - you're heading out of here? Now? Can I go with you?
(How I feel when I go out to a bar with friends on a Friday night. What a wonderful college pastime. And my friends ask me why I'm boring and stay in on the weekends.)
Oh, there you all are. I lost sight of you in the dim light. No, I don't think I'll put my jacket down. I'm fine. Is there music on, the way some of you keep swaying back and forth? No room to sway, but you're doing it anyway. But all I hear is the constant din. Noise, that's the only word to describe it, just noise. Some people at a booth are having burgers and fries, and I feel like I'm practically sitting in their food. I'm sorry, I'm sorry, but no one apologizes in a place like this. I'm in all of your laps. The group bunches so close together we might as well all be standing in a closet. I wring my neck just to see the person standing next to me. The conversation spins faster and faster.
Laughter. Voices. All of it smashed together, a processed, ground-beef patty of noise. I can't pitch my voice just right to be heard over it. Assuming that it is possible to hear anything through this - I can't hear myself, can't hear anyone, and it astonishes me that anyone can. Oh hi, how are you. Every time I say something, you say what and I talk louder, practically shouting, and you tilt your head to hear me. I'm talking into the hole in your head, into your head and the pinna of your ear, not into your face, and it bothers me. Look at me. Watch my face. Someone asks if I want something - oh, it's food, some kind of food - and my hand raises in the sign for food and drink. Are you getting anything to eat or drink? But you don't know sign. Shoot. I shout again. How much easier this would be if I could just fingerspell and have you U-N-D-E-R-S-T-A-N-D. But I can't see anyway. Touche.
Neon signs. Television blaring. Advertisement swoops up for NCAA March Madness. Barista swoops in and out with drinks. Walls are a rose pink. I stare at the artwork. Most of it seems a touch raunchy, advertising drinks with suggestive names. Friends lean in past me to talk to each other. I've just shaken the hand of a guy whose name I keep missing. He's cute enough, but - no, never mind, not if he talks like that. Not a snowball's chance of understanding him. I'm weaving through the sheets of people. All of these vertical bodies, no room to be horizontal. My eyes hurt, and it feels like I'm squinting through smoke, but there's no smoke in here, only darkness. Yet the way everyone else talks seems so natural. What? Repeat that, please? Um, yeah. Okay. Everyone's laughing. What did you say? Never mind.
And, finally - you're heading out of here? Now? Can I go with you?
(How I feel when I go out to a bar with friends on a Friday night. What a wonderful college pastime. And my friends ask me why I'm boring and stay in on the weekends.)
Wednesday, February 15, 2012
What is Hard (Versus What is Easy)
So easy sometimes to make some amount of progress and then realize how far you have to go. What is more, so thought-provoking sometimes to reflect on progress itself in terms of what is hard and what is easy.
Things are easy now that weren't before. In auditory therapy this past week, I got several strings of words as long as 11 or 12. And got them perfectly. My auditory memory was working overload and could barely regurgitate them before the whole string vanished entirely, but... 12 words?! That's a really big deal. The other day while riding I heard (and, more importantly, understood) my coach yell directions across the arena to another rider. I grasp full sentences over the PA more and more often at horse shows. It's easier to relax in daily situations with noise; no longer is it so jarring and strange.
Still, the moments of clarity notwithstanding, much of listening is still a matter of fighting for every scrap of information I get. It's pulling myself up a sheer rock face by my fingertips. It's teasing something small and slippery out of a hole it doesn't want to leave. And then I get my prize and, tired and a bit proud of myself, look around at the world around me and feel abashed. What I have just accomplished is nothing, absolutely nothing, compared with what's possible with sound.
Really, the thing about hearing that makes me marvel is how, when it's working properly and all circuits are firing, it's all rather easy. This never struck me too much before the CI; listening and hearing was just something I didn't do, something I relegated to the realms of hearing people. I never considered how it works. Think about it. Sound waves compress, travel through the air, enter your head through two small holes, make a series of bones shift and membranes vibrate and nerve cells pulse - and then the brain calculates the frequencies and combines them and evaluates what they mean. And then you understand and respond within an instant. It's astounding. I watch my hearing peers and marvel at how easy everything is. How thoughtless. It feels beautiful, in a way. Picking up the phone while driving, or otherwise multitasking, and having a rapid-fire conversation with your mother. Navigating through overlapping voices, engaging in high-speed banter. Sitting in a noisy, dimly lit restaurant at a large table and speaking across to someone five seats away and somehow - I have no idea how - picking up on their voice shooting at you amidst the din. Isolating that voice and recognizing it and holding on to its coherence. There's a peculiar kind of intimacy about those kinds of daily exchanges. I've been watching such things lately and wondering, now that I have some vague sense of that facility of auditory access, what they would feel like for me. Honestly, it fills me with an unexpected feeling of wonder.
And then I think of myself, inching up my rock face. That sense of difficulty versus ease: the moments that it occurs to me are the moments that I feel farthest away from hearing-world immersion, because what is most arduous for me is most thoughtless for them. I want it to be easy, as easy as fitting together words and writing them on the page, and I know that it will never be. I want to know what easy feels like. Gliding in and out of sound and, most importantly, meaning. Dancing with the facility of words. This may be what I'm thinking of - and then I remind myself how many other things in my life are wonderfully, unbelievably, laughably easy. And then I stop and, indeed, have to laugh a little.
But because something is hard doesn't mean that it is less worthy of joy. It was hard, but I did it, versus It was easy, but I did it. In both cases, I'm left with simply, I did it. And that doing is enough, at whatever level it takes place. Here's to not taking our skills and actions for granted. And here's to "it" - listening, hearing, understanding, communicating - becoming easier and easier. :)
Things are easy now that weren't before. In auditory therapy this past week, I got several strings of words as long as 11 or 12. And got them perfectly. My auditory memory was working overload and could barely regurgitate them before the whole string vanished entirely, but... 12 words?! That's a really big deal. The other day while riding I heard (and, more importantly, understood) my coach yell directions across the arena to another rider. I grasp full sentences over the PA more and more often at horse shows. It's easier to relax in daily situations with noise; no longer is it so jarring and strange.
Still, the moments of clarity notwithstanding, much of listening is still a matter of fighting for every scrap of information I get. It's pulling myself up a sheer rock face by my fingertips. It's teasing something small and slippery out of a hole it doesn't want to leave. And then I get my prize and, tired and a bit proud of myself, look around at the world around me and feel abashed. What I have just accomplished is nothing, absolutely nothing, compared with what's possible with sound.
Really, the thing about hearing that makes me marvel is how, when it's working properly and all circuits are firing, it's all rather easy. This never struck me too much before the CI; listening and hearing was just something I didn't do, something I relegated to the realms of hearing people. I never considered how it works. Think about it. Sound waves compress, travel through the air, enter your head through two small holes, make a series of bones shift and membranes vibrate and nerve cells pulse - and then the brain calculates the frequencies and combines them and evaluates what they mean. And then you understand and respond within an instant. It's astounding. I watch my hearing peers and marvel at how easy everything is. How thoughtless. It feels beautiful, in a way. Picking up the phone while driving, or otherwise multitasking, and having a rapid-fire conversation with your mother. Navigating through overlapping voices, engaging in high-speed banter. Sitting in a noisy, dimly lit restaurant at a large table and speaking across to someone five seats away and somehow - I have no idea how - picking up on their voice shooting at you amidst the din. Isolating that voice and recognizing it and holding on to its coherence. There's a peculiar kind of intimacy about those kinds of daily exchanges. I've been watching such things lately and wondering, now that I have some vague sense of that facility of auditory access, what they would feel like for me. Honestly, it fills me with an unexpected feeling of wonder.
And then I think of myself, inching up my rock face. That sense of difficulty versus ease: the moments that it occurs to me are the moments that I feel farthest away from hearing-world immersion, because what is most arduous for me is most thoughtless for them. I want it to be easy, as easy as fitting together words and writing them on the page, and I know that it will never be. I want to know what easy feels like. Gliding in and out of sound and, most importantly, meaning. Dancing with the facility of words. This may be what I'm thinking of - and then I remind myself how many other things in my life are wonderfully, unbelievably, laughably easy. And then I stop and, indeed, have to laugh a little.
But because something is hard doesn't mean that it is less worthy of joy. It was hard, but I did it, versus It was easy, but I did it. In both cases, I'm left with simply, I did it. And that doing is enough, at whatever level it takes place. Here's to not taking our skills and actions for granted. And here's to "it" - listening, hearing, understanding, communicating - becoming easier and easier. :)
Tuesday, February 7, 2012
Pre-Wired
Even with the CI, I keep running into the differences that I feel between my interests/pastimes and hearing culture. A lot of this might be more personality than deafness-related, but the fact is that being deaf has shaped my personality in one way or another. And even now that I'm hearing more, those deep-engrained preferences are still just there. They're not good or bad; they just are.
Take, for instance, music. I still remember seeing a deaf friend not long after I got the CI and having her tell me that she'd come to appreciate music more since getting her own CIs, but that she still wouldn't call music an active pleasure in her life. She didn't mind it if it was on, could even enjoy it sometimes, but she didn't actively seek it out. "I wouldn't waste the energy to get up and walk across the room and turn the stereo on, if you know what I mean," was what she told me. "Having it be quiet is fine by me, and honestly a lot of the time I prefer the silence." I remember having that conversation (it was about a year ago) while I was still in more flux between the deaf and the hearing worlds, still not quite knowing what would be possible for me with the CI or how it would change me. What! No! Music is cool! It has rhythm and pitch and complexity and whatever else - and I can hear it now! This is finally something to share with my hearing friends!
A year later, I think I've learned not to force things. I've ended up at a similar place as my friend. I'm grateful for the opportunity to experience music in my life, and when I find it playing in the background I can appreciate it much more than I used to, but... that's it. My brain hasn't made enough sense of it to be in awe, or addicted, or whatever hearing people feel when they listen to a song they like. Music isn't at the core of my being, and never will be. It's a roadside attraction when I happen to pass it by, but not something I pursue. I realize that some hearing friends might read this and find it sad, or pity me for missing out, but I don't feel any of those things. There might have been a point, immediately post-CI, where I was anxious for the device to do for and instill everything in me, when I would have viewed this relative apathy as a failure. But it's not. It's something like a hearing sighted person who isn't all that into art, but who will go to a museum from time to time with friends, nod appreciatively, and then leave. And I know several hearing people who are that way about music - my parents, for instance. I never had a very musical household growing up, my sister excluded. My parents like music when it tumbles into their lives. But they don't go out of their way for it. And neither, it turns out, do I.
This past weekend I was roadtripping back from an event with some teammates when they jacked someone's iPhone into the car, worked their way through a playlist of songs (what kinds of songs? I wish I could say), and all sang along for a good hour or so. The volume was amped up, the car was shaking, I was in the front passenger seat listening to them sing. There might have been a time in which a scene like that would have left me browbeating myself, feeling miserable, drowning in my own isolation. Obviously I couldn't sing along. I didn't know what song it was. I hardly knew anything about the music at all, save that I could hear it. Our worlds were leagues apart. Theirs - the world of music videos, of concerts, of karaoke, of singalongs. Mine - of thoughts, books, visual culture, and none of those auditory-based things. But the fact that I could be there with them, hearing if not quite sharing in the same experience or feelings, but still tapping somewhat vicariously into their car-ride singalong, was enough. They got something more complex out of the music than I did, but my own thoughts did get the opportunity to fly off unhindered. I found myself looking at that space between us, understanding what it was, and feeling more at peace with it than ever before. Maybe part of me even enjoyed it. To each his own.
And, honestly, this example sums up something I've been feeling lately - that, even though I am not a hearing person and cannot (or do not care to) participate in all of the facets of hearing culture, my own experience is so unique that I cannot dismiss it. This isn't a justification for exclusion or insensitivity, nor is it allotting certain things to the hearing that the deaf cannot or should not do. It's more of a commentary on myself, and on discovering personal preferences. My deafness has shaped me, for one end or another. Now that I can hear music and experience other things, I take the taste of it, smile, and feel appreciative. Then I realize even more strongly what I truly do love to do - for myself. Not for the sake of fitting in, but for my own abilities and passions, and for no other reason.
Take, for instance, music. I still remember seeing a deaf friend not long after I got the CI and having her tell me that she'd come to appreciate music more since getting her own CIs, but that she still wouldn't call music an active pleasure in her life. She didn't mind it if it was on, could even enjoy it sometimes, but she didn't actively seek it out. "I wouldn't waste the energy to get up and walk across the room and turn the stereo on, if you know what I mean," was what she told me. "Having it be quiet is fine by me, and honestly a lot of the time I prefer the silence." I remember having that conversation (it was about a year ago) while I was still in more flux between the deaf and the hearing worlds, still not quite knowing what would be possible for me with the CI or how it would change me. What! No! Music is cool! It has rhythm and pitch and complexity and whatever else - and I can hear it now! This is finally something to share with my hearing friends!
A year later, I think I've learned not to force things. I've ended up at a similar place as my friend. I'm grateful for the opportunity to experience music in my life, and when I find it playing in the background I can appreciate it much more than I used to, but... that's it. My brain hasn't made enough sense of it to be in awe, or addicted, or whatever hearing people feel when they listen to a song they like. Music isn't at the core of my being, and never will be. It's a roadside attraction when I happen to pass it by, but not something I pursue. I realize that some hearing friends might read this and find it sad, or pity me for missing out, but I don't feel any of those things. There might have been a point, immediately post-CI, where I was anxious for the device to do for and instill everything in me, when I would have viewed this relative apathy as a failure. But it's not. It's something like a hearing sighted person who isn't all that into art, but who will go to a museum from time to time with friends, nod appreciatively, and then leave. And I know several hearing people who are that way about music - my parents, for instance. I never had a very musical household growing up, my sister excluded. My parents like music when it tumbles into their lives. But they don't go out of their way for it. And neither, it turns out, do I.
This past weekend I was roadtripping back from an event with some teammates when they jacked someone's iPhone into the car, worked their way through a playlist of songs (what kinds of songs? I wish I could say), and all sang along for a good hour or so. The volume was amped up, the car was shaking, I was in the front passenger seat listening to them sing. There might have been a time in which a scene like that would have left me browbeating myself, feeling miserable, drowning in my own isolation. Obviously I couldn't sing along. I didn't know what song it was. I hardly knew anything about the music at all, save that I could hear it. Our worlds were leagues apart. Theirs - the world of music videos, of concerts, of karaoke, of singalongs. Mine - of thoughts, books, visual culture, and none of those auditory-based things. But the fact that I could be there with them, hearing if not quite sharing in the same experience or feelings, but still tapping somewhat vicariously into their car-ride singalong, was enough. They got something more complex out of the music than I did, but my own thoughts did get the opportunity to fly off unhindered. I found myself looking at that space between us, understanding what it was, and feeling more at peace with it than ever before. Maybe part of me even enjoyed it. To each his own.
And, honestly, this example sums up something I've been feeling lately - that, even though I am not a hearing person and cannot (or do not care to) participate in all of the facets of hearing culture, my own experience is so unique that I cannot dismiss it. This isn't a justification for exclusion or insensitivity, nor is it allotting certain things to the hearing that the deaf cannot or should not do. It's more of a commentary on myself, and on discovering personal preferences. My deafness has shaped me, for one end or another. Now that I can hear music and experience other things, I take the taste of it, smile, and feel appreciative. Then I realize even more strongly what I truly do love to do - for myself. Not for the sake of fitting in, but for my own abilities and passions, and for no other reason.
Saturday, January 28, 2012
Deaf Dining: Mozzeria
Today marked probably one of the most unique and interesting restaurant experiences that I've had. A friend of mine had seen the following article about Mozzeria, a new pizza restaurant in San Francisco's Mission district, and, along with another friend, today we decided to go:
http://www.sfgate.com/cgi-bin/article.cgi?f=/c/a/2012/01/04/FD2U1MKA7S.DTL
The cool thing about Mozzeria is that it's owned by a deaf couple, most of the employees are deaf themselves, and nearly all of them sign. The two friends I went with today are both hearing, but both sign rather well (both have been former roommates of mine :) ), and I think the three of us were all excited to see what a signing dining environment would be like.
I admit, walking into this restaurant and immediately having the hostess sign to us, then raise a printed paper in case we were hearing non-signers and hadn't understood, was a pretty amazing moment for me personally. I felt myself shedding much of the communication anxiety I have when I go out in public, especially out to eat when I know I will need to interact with a waiter. Talking with hearing waiters is usually fine for me, and I've done it for years, but I do miss things they say - when they go on about the special of the day or ask other unexpected questions, I'm thrown off and rely on my hearing friends to fill in for me and/or translate. Today I was pleased to discover how reassuring that added measure of communicative clarity felt with sign. Is this the way the world feels for the hearing, so much more open and empowering?
Our brunch/lunch at Mozzeria was in many ways a typical eating-out experience: we took our menus, ordered, ate, and paid the bill amidst our own conversation, interactions with the waiter, etc. But the fresh surprise I felt, despite myself, every time a waiter or other employee reappeared and started signing to me - signing! - made me feel more alive to, as well as relaxed in, my surroundings than usual. Even though I've long detached myself from the Deaf world for a variety of reasons, the truth is that I never feel more at home than when the people around me are signing. I saw busboys and chefs walk by signing across the room to each other. A few of them had hearing aids. Several of the tables were filled with deaf people, and one older lady waved over and started a conversation. I can't remember the last time I interacted casually with other diners at a restaurant. I don't know if it's at all typical for hearing people (minus a very odd extended conversation my family once had with a total stranger in a Chinese restaurant in DC), but for me chance interactions with hearing strangers in public places are rare. At one point, the deaf group left and a hearing party came in to replace them at the table beside ours, and the three of us joked that now it was they who were out of place. Not that Mozzeria did not cater to non-signing hearing people - our waiter was hearing and spoke as well as signed, and the restaurant ran just like any other. But the vibe itself was different.
All of the above points were reiterated for me when, after our stint at Mozzeria, we decided to head over to another place for dessert. This was in some ways another highlight of the day (since after all the dessert was composed of New Mexico-style green chile apple pie! in San Francisco!), but ordering from the hearing woman behind the counter, zoning in on her face and nevertheless suffering a bit of a communicative bobble when she asked if I wanted my pie a la mode, showed me how nice it had been to go to a restaurant so centered around sign. If only once.
Now I hope I can go back sometime - and maybe take another hearing friend or two :)
http://www.sfgate.com/cgi-bin/article.cgi?f=/c/a/2012/01/04/FD2U1MKA7S.DTL
The cool thing about Mozzeria is that it's owned by a deaf couple, most of the employees are deaf themselves, and nearly all of them sign. The two friends I went with today are both hearing, but both sign rather well (both have been former roommates of mine :) ), and I think the three of us were all excited to see what a signing dining environment would be like.
I admit, walking into this restaurant and immediately having the hostess sign to us, then raise a printed paper in case we were hearing non-signers and hadn't understood, was a pretty amazing moment for me personally. I felt myself shedding much of the communication anxiety I have when I go out in public, especially out to eat when I know I will need to interact with a waiter. Talking with hearing waiters is usually fine for me, and I've done it for years, but I do miss things they say - when they go on about the special of the day or ask other unexpected questions, I'm thrown off and rely on my hearing friends to fill in for me and/or translate. Today I was pleased to discover how reassuring that added measure of communicative clarity felt with sign. Is this the way the world feels for the hearing, so much more open and empowering?
Our brunch/lunch at Mozzeria was in many ways a typical eating-out experience: we took our menus, ordered, ate, and paid the bill amidst our own conversation, interactions with the waiter, etc. But the fresh surprise I felt, despite myself, every time a waiter or other employee reappeared and started signing to me - signing! - made me feel more alive to, as well as relaxed in, my surroundings than usual. Even though I've long detached myself from the Deaf world for a variety of reasons, the truth is that I never feel more at home than when the people around me are signing. I saw busboys and chefs walk by signing across the room to each other. A few of them had hearing aids. Several of the tables were filled with deaf people, and one older lady waved over and started a conversation. I can't remember the last time I interacted casually with other diners at a restaurant. I don't know if it's at all typical for hearing people (minus a very odd extended conversation my family once had with a total stranger in a Chinese restaurant in DC), but for me chance interactions with hearing strangers in public places are rare. At one point, the deaf group left and a hearing party came in to replace them at the table beside ours, and the three of us joked that now it was they who were out of place. Not that Mozzeria did not cater to non-signing hearing people - our waiter was hearing and spoke as well as signed, and the restaurant ran just like any other. But the vibe itself was different.
All of the above points were reiterated for me when, after our stint at Mozzeria, we decided to head over to another place for dessert. This was in some ways another highlight of the day (since after all the dessert was composed of New Mexico-style green chile apple pie! in San Francisco!), but ordering from the hearing woman behind the counter, zoning in on her face and nevertheless suffering a bit of a communicative bobble when she asked if I wanted my pie a la mode, showed me how nice it had been to go to a restaurant so centered around sign. If only once.
Now I hope I can go back sometime - and maybe take another hearing friend or two :)
Thursday, January 26, 2012
It Is What It Is
It's funny, right after posting about that forwarded petition on audism (which left me brooding over the whole idea of Deaf isolation/hearing-world immersion), I got myself dressed up and headed over to a networking event on campus. It was hosted by a women's group that I'm involved with, and although I'm never quite excited to go to those things, I figured I'd resort to the old standby: suck it up, go and be seen, and try to handle it all as graciously as possible. But when I got there I quickly found that it wasn't going to be my kind of night. The room was loud and crowded, full of strangers talking in groups, many of them too difficult to lipread even if I could focus amidst the noise. The CI was more of a distraction than a help. On top of that, I was informed that there would be an assortment of activities and guest speakers for a fair deal of the time - not something I was prepared to handle at that time of night without an interpreter. A bit deflated but not exactly surprised, I left early. My night did go on to better and more useful things, but the thought racing through my mind as I walked back to my room was, No wonder it's so easy to retreat into Deaf culture.
Not that that's an option for me. It isn't, nor would I want it to be. Still, I do have my moments when it seems that the hearing world isn't at all made for me - a sentiment that I know resonates with other deaf and hard-of-hearing people. As I've gotten older, I've gotten better at maneuvering through these disconnected moments and figuring out how to avoid them. A lot of that involves advance planning (for interpreters and other accommodations), some self-advocacy, and sheer self-knowledge. The unexpected does come up, regardless, the moments in which I find myself stuck and really not able to communicate as I'd like to. And, as uncomfortable as the entire rhetoric of Deaf culture can make me, I'll be honest in admitting that during those moments it can be easy to think of groups of D/deaf people with more fondness than groups of hard-to-understand hearing people, at least in the abstract. It's easy to want to be isolationist. It's easy to be hurt and angry simultaneously at everyone and at no one in particular. It's easy to want to reject the system that seems not to care about your needs, much less provide for them. It's easy to want to band together with someone - anyone - in defiance of the linguistic and communicative barrier that accompanies hearing loss.
All of this makes sense to me in one tumultuous, emotionally chaotic moment. And then I take a deep breath, count my blessings (of which there are many!), and engage in some form of the serenity prayer. This does not define me. There are ways around the barrier, just as there have been scores of times before. And, sometimes, it just is what it is.
Not that that's an option for me. It isn't, nor would I want it to be. Still, I do have my moments when it seems that the hearing world isn't at all made for me - a sentiment that I know resonates with other deaf and hard-of-hearing people. As I've gotten older, I've gotten better at maneuvering through these disconnected moments and figuring out how to avoid them. A lot of that involves advance planning (for interpreters and other accommodations), some self-advocacy, and sheer self-knowledge. The unexpected does come up, regardless, the moments in which I find myself stuck and really not able to communicate as I'd like to. And, as uncomfortable as the entire rhetoric of Deaf culture can make me, I'll be honest in admitting that during those moments it can be easy to think of groups of D/deaf people with more fondness than groups of hard-to-understand hearing people, at least in the abstract. It's easy to want to be isolationist. It's easy to be hurt and angry simultaneously at everyone and at no one in particular. It's easy to want to reject the system that seems not to care about your needs, much less provide for them. It's easy to want to band together with someone - anyone - in defiance of the linguistic and communicative barrier that accompanies hearing loss.
All of this makes sense to me in one tumultuous, emotionally chaotic moment. And then I take a deep breath, count my blessings (of which there are many!), and engage in some form of the serenity prayer. This does not define me. There are ways around the barrier, just as there have been scores of times before. And, sometimes, it just is what it is.
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