This is going to be a quick post, because I really should be studying right now...
But huge CI moment for me this weekend, as I competed for Stanford's equestrian team in a home horse show. For the first time ever, the PA system was making sense to me during the equitation on the flat classes, when I stood by the back gate within clear listening range. (I did have a similar experience a few weekends ago at an away show, but the volume and sound quality in that arena were so cruddy that I really didn't get much more than an isolated word or two, and even then I might have been making that up.) Getting ready for my class yesterday and earlier today, I watched the other riders in the arena and listened to the announcer give the verbal commands for which gait they should display next, and found my stomach doing little lighthearted flips. Because, almost every single time, I got it!
"Riders, to the rising trot."
"Sitting trot, please."
"Riders, canter please."
"Riders, please walk and line up in the center of the ring."
"Riders, drop your stirrups."
You get the point. I even got the numbers being announced sometimes, when there wasn't too much background noise or cheering from the crowd. Now, I've competed in horse shows for much of my life, and this has me feeling so giddy. I used to be terrified - absolutely terrified - of flat classes because of my fear of (and actual experience with) missing the announcer's commands and performing much worse than my best. I used to get unbearably tense before every such class, and would often ride abominably because of my preoccupation with what the other riders were doing - was I doing it right? What was next? When would the next transition come? Would it catch me off-guard?
Today - entirely different story. Although my auditory processing wasn't as stellar when I was on the horse rather than standing and watching, I did pick up a few things during my own class. All this made me feel like running and jumping up and down and telling my friends and teammates, "I hear it, I understand it! Canter! Canter!" (A note: I restrained myself. Flat class announcing is far too mundane for such enthusiasm.)
Granted, all of these commands tend to be rather redundant. But in terms of a closed set that's actually applicable to an area of my life, whoo-hoo!
Sunday, February 6, 2011
Tuesday, February 1, 2011
Auditory Memory and Other Ramblings
Auditory therapy, session two. Take-away points: right now it's all about building confidence and auditory memory. (Nothing new. That mental sound dictionary is going to be years in the making.) And it's about making myself stretch, too, defining a set that's neither too open nor too closed. I have to flex my listening muscles, so to speak, and make myself work hard without becoming frustrated or feeling like the answer is out of reach. It's a tricky balance. So how do I push those boundaries? This week we tried several things. Listening and selecting sentences at different volumes and distances, defining a category and then having me discern open-ended statements about it, listening to sets of words and determining which one did not belong. That brain of mine is still reluctant to listen, to put its faith in something previously so unknown, but the more I push it the more it cooperates.
Also, I need to put aside my fear of incomprehension. It's a bit ironic that lack of communication is probably my biggest fear, yet it's something with which I have a tremendous amount of experience. Over the years I've come up with a number of coping mechanisms for situations when I'm just not getting it. My brain has gotten good at glossing things over, at filling in the blanks when it can and trying to cope when it can't. Up to this point, that puzzle-solving process has mainly applied to lipreading, but now it applies to listening too. While deciphering the speech sounds I hear, I need to make myself release some of my inner tension. I'm going into overdrive, piecing together sounds in an attempt to extract a statement that makes sense, and worrying when none of it fits - but, when things do click, it often happens suddenly. No analysis involved: I know what I'm hearing! That's the goal, moving forward - to ask myself, am I listening with my ears or with my brain? That analytical mind of mine has always been a huge asset, but maybe one day it'll be a bit less necessary, or a bit less overburdened, as more of the pieces fall into place. What a great thought.
And, finally - this may be a bit redundant, but I keep feeling stunned at the texture of the world with sound in it. Seven months has not distilled my private sense of wonder. There's a bird building a nest outside my window, and I hear it right now as I type. I've been noticing new types of bird calls around campus, too, and other sounds keep shadowing me, feeling more and more like good friends. The whistling of the wind, the squeal of my bike tires, overlapping machinery, people's voices carrying over from the most improbable places. Hard work aside, all of this is so, so amazing.
Also, I need to put aside my fear of incomprehension. It's a bit ironic that lack of communication is probably my biggest fear, yet it's something with which I have a tremendous amount of experience. Over the years I've come up with a number of coping mechanisms for situations when I'm just not getting it. My brain has gotten good at glossing things over, at filling in the blanks when it can and trying to cope when it can't. Up to this point, that puzzle-solving process has mainly applied to lipreading, but now it applies to listening too. While deciphering the speech sounds I hear, I need to make myself release some of my inner tension. I'm going into overdrive, piecing together sounds in an attempt to extract a statement that makes sense, and worrying when none of it fits - but, when things do click, it often happens suddenly. No analysis involved: I know what I'm hearing! That's the goal, moving forward - to ask myself, am I listening with my ears or with my brain? That analytical mind of mine has always been a huge asset, but maybe one day it'll be a bit less necessary, or a bit less overburdened, as more of the pieces fall into place. What a great thought.
And, finally - this may be a bit redundant, but I keep feeling stunned at the texture of the world with sound in it. Seven months has not distilled my private sense of wonder. There's a bird building a nest outside my window, and I hear it right now as I type. I've been noticing new types of bird calls around campus, too, and other sounds keep shadowing me, feeling more and more like good friends. The whistling of the wind, the squeal of my bike tires, overlapping machinery, people's voices carrying over from the most improbable places. Hard work aside, all of this is so, so amazing.
Friday, January 28, 2011
You Know It's Loud When...
The place where I live in college is big on parties. Almost every night the sounds of music, commotion, and people talking rushes through my wall into my room. I cannot escape (or, rather, refuse to escape), but it's a good exercise in filtering out irrelevant noise.
But last night - someone's twenty-second birthday. The house is packed and rather drunken. I've had a long week and am off to bed. I walk down the hall, past hordes of people squished together, sloshing their ubiquitous red solo cups. I am about to wash my face in the bathroom and have taken off both my hearing aid and CI. I float in silence. In that state of total deafness, I sink into my usual detachment and amused objectivity. That voice in my mind speaks up wryly; I wonder if any of these people realize how strange they appear from the outside, with the sound turned off, mouths gaping and faces contorted into improbable expressions. I want to laugh, even as I find it slightly grotesque. The uniqueness of my version of reality accompanies me as I weave through the crowd, not caring for any of it now that I cannot hear.
But I can hear, that's what disturbs me most: the music is so loud. It's thundering through my body, the beat sharply defined and harsh. And, in my right ear, in my non-CI ear that still has some residual hearing left, I can hear faint, far-away thrums. They slam into my head like popping, shocking my brain with their brute physical force. (Not so in the left ear, which remains eerily silent, so different from when magnet fastens onto skull - wow, I have become completely dependent on that apparatus.) A group beside me shouts, the song changes. And I hear it. If it's that penetrating and noisy, that even my deafness cannot shut it out, how can it be possible that the people around me are not going deaf themselves?
Except I know they must be. This is too much noise for it to be otherwise. I am reminded of a conversation I had with my auditory therapist earlier this week: just wait a few years. Soon more and more of them will be struggling to hear, to keep up, to understand, and I'll find myself better equipped to cope with hearing loss than any of them. Now, that's ironic.
And, yes, the silence as an escape is nice, but embracing it for the sake of 120 decibels of a pop song? Not worth it. I keep feeling troubled by what hearing people do to themselves. Breathe. Turn the volume down, for your own sake.
But last night - someone's twenty-second birthday. The house is packed and rather drunken. I've had a long week and am off to bed. I walk down the hall, past hordes of people squished together, sloshing their ubiquitous red solo cups. I am about to wash my face in the bathroom and have taken off both my hearing aid and CI. I float in silence. In that state of total deafness, I sink into my usual detachment and amused objectivity. That voice in my mind speaks up wryly; I wonder if any of these people realize how strange they appear from the outside, with the sound turned off, mouths gaping and faces contorted into improbable expressions. I want to laugh, even as I find it slightly grotesque. The uniqueness of my version of reality accompanies me as I weave through the crowd, not caring for any of it now that I cannot hear.
But I can hear, that's what disturbs me most: the music is so loud. It's thundering through my body, the beat sharply defined and harsh. And, in my right ear, in my non-CI ear that still has some residual hearing left, I can hear faint, far-away thrums. They slam into my head like popping, shocking my brain with their brute physical force. (Not so in the left ear, which remains eerily silent, so different from when magnet fastens onto skull - wow, I have become completely dependent on that apparatus.) A group beside me shouts, the song changes. And I hear it. If it's that penetrating and noisy, that even my deafness cannot shut it out, how can it be possible that the people around me are not going deaf themselves?
Except I know they must be. This is too much noise for it to be otherwise. I am reminded of a conversation I had with my auditory therapist earlier this week: just wait a few years. Soon more and more of them will be struggling to hear, to keep up, to understand, and I'll find myself better equipped to cope with hearing loss than any of them. Now, that's ironic.
And, yes, the silence as an escape is nice, but embracing it for the sake of 120 decibels of a pop song? Not worth it. I keep feeling troubled by what hearing people do to themselves. Breathe. Turn the volume down, for your own sake.
Monday, January 24, 2011
Milestones!
Today I popped on my CI and drove out for my first session with an auditory therapist since September. I'd been into her office once or twice over the summer when I flew out for remappings, but due to being gone for so long I hadn't been on any kind of directed program. Go out into the world and figure out the sounds in it! That was my task.
And, in many ways, it will continue to be my task for a while yet. CI rehab, if nothing else, is very individually motivated. I was pleased to find today that I've achieved a slew of milestones since July and September - things that were hard or impossible for me then are easy now. (Or, if not easy, then possible. That's still encouraging!) I could identify all of the major speech sounds, something which brought back memories of sitting in my house in July getting frustrated over "ah" and "oo" and wondering if this contraption would ever make sense. Ah, YES. Sentence and word identification, provided that I had a closed set, also turned out to be a relative breeze, even without a leading phrase for minimal-pair words. Open sets are still a struggle, not unexpectedly so, but I'm picking out bits and sounds throughout the sentences I'm given. (This is something I've noticed in everyday use, while sitting where I cannot lipread a person - I can catch the common words like "and," "but," "or," "I mean," "you know." Of course, this doesn't help very much with the sentence at large. But it's something!)
We also discussed brain and listening development up to this point and in the future, talked about the interaction between hearing aid and CI (which continues to evolve), thought about issues in quiet versus noise (still one of my biggest challenges), plus came up with some strategies for dealing with everyday situations and continuing my everyday listening practice. Every day that I wear the CI is practice! I need to remember that; all along I've been hard on myself for not doing enough structured listening. But my brain does pick up on meanings and nuances on its own, I still don't know how. One example: I was told today, and have been told by countless people at other times, that my speech has really noticeably improved since the CI. It's not that I spoke poorly before, just that my enunciation has smoothened out, become more regular, and my clarity and volume is the best it's been. Now, this is nice to hear, but it's not something that's happened consciously. I don't think more about my speech now than I did seven months ago. It's just my brain automatically and subconsciously correcting old habits to correspond with how I hear other people talk. How wild is that?
Finally, one of my big takeaway points is that, moving forward, building self-confidence will be key. Once I believe that I can do something, once I relax and smile and take it in stride, then listening comes easier and easier. This entire process of disproving my two-decade-old convictions is quite strange... But how wonderful to have a day where everything falls into perspective!
And, in many ways, it will continue to be my task for a while yet. CI rehab, if nothing else, is very individually motivated. I was pleased to find today that I've achieved a slew of milestones since July and September - things that were hard or impossible for me then are easy now. (Or, if not easy, then possible. That's still encouraging!) I could identify all of the major speech sounds, something which brought back memories of sitting in my house in July getting frustrated over "ah" and "oo" and wondering if this contraption would ever make sense. Ah, YES. Sentence and word identification, provided that I had a closed set, also turned out to be a relative breeze, even without a leading phrase for minimal-pair words. Open sets are still a struggle, not unexpectedly so, but I'm picking out bits and sounds throughout the sentences I'm given. (This is something I've noticed in everyday use, while sitting where I cannot lipread a person - I can catch the common words like "and," "but," "or," "I mean," "you know." Of course, this doesn't help very much with the sentence at large. But it's something!)
We also discussed brain and listening development up to this point and in the future, talked about the interaction between hearing aid and CI (which continues to evolve), thought about issues in quiet versus noise (still one of my biggest challenges), plus came up with some strategies for dealing with everyday situations and continuing my everyday listening practice. Every day that I wear the CI is practice! I need to remember that; all along I've been hard on myself for not doing enough structured listening. But my brain does pick up on meanings and nuances on its own, I still don't know how. One example: I was told today, and have been told by countless people at other times, that my speech has really noticeably improved since the CI. It's not that I spoke poorly before, just that my enunciation has smoothened out, become more regular, and my clarity and volume is the best it's been. Now, this is nice to hear, but it's not something that's happened consciously. I don't think more about my speech now than I did seven months ago. It's just my brain automatically and subconsciously correcting old habits to correspond with how I hear other people talk. How wild is that?
Finally, one of my big takeaway points is that, moving forward, building self-confidence will be key. Once I believe that I can do something, once I relax and smile and take it in stride, then listening comes easier and easier. This entire process of disproving my two-decade-old convictions is quite strange... But how wonderful to have a day where everything falls into perspective!
Monday, January 17, 2011
Success, Undermined
One thing that frequently bothers me is the uniqueness of my position, not only with receiving a CI at my age in my circumstances, but in doing the things that I do, as a deaf person.
I applied for a job earlier this month, and got a prompt email response praising my resume as well-qualified, with the inevitable line, "Please give me a call at xxx number so we can discuss this further." Oh, jeez. This again. Obviously I hadn't mentioned the whole deaf thing from the start; it was completely irrelevant. But obviously it had to come out now. So, taking a deep breath and feeling vaguely abashed (as I always do in such situations), I fired off a reply explaining that phone calls weren't an option for me, could we meet in person or email, et cetera. The answer I got: "How wonderful that you have gone this far in spite of being deaf." Uhhh. Yeah. Gah. And then a few evasive lines about being uncertain of whether I could manage the job because of my phone incompatability and challenges in receiving verbal feedback. Well, so much for that.
This is just one recent instance (and a pretty mild example, at that) of several things that I keep running up against. The necessity of labeling myself as deaf - which I am, yes, on one hand - even while I feel like I've morphed into some strange organism with head jumbled full of noise. Deaf, but not entirely. And not hearing either. The question of what I will be able to accomplish or do at any time in the future, and the uncertainty that accompanies such a state of flux. The assumptions that hearing people make, that everyone has the same mainstream abilities. The way I myself make these assumptions, that other people can see or run or jump or be athletic or learn quickly or eat an unhindered diet. (This bothers me. I hate assumptions, and hate that I should make them. But, in the end, aren't they necessary for collective groups to function?) Finally, the resentment that a deaf individual with my level of proficiency (in academic accomplishment, in verbal skills, in whatever) should be considered "exceptional." The perception that deafness is some sort of terrible barrier against high achievement.
Don't get me wrong, deafness can be a terrible barrier. No one knows that better than I do. But what most frequently makes it terrible, in essence, isn't the competence of the deaf individual in question - it's simply that the way the mainstream world works is incompatible with what that individual needs to thrive. Language. Accessibility. Early intervention. Visual media. Understanding. A social and therapeutic safety net. That this ideal environment doesn't exist isn't anyone's fault, not entirely. It's a problem that I don't quite know the answer to, but it bothers me constantly. Deaf people (contrary to the old moniker) aren't dumb. But I look around and don't see any of them at Stanford. I doubt there are very many at Harvard, Princeton, or Yale, either. I see very few of them in high-functioning, mainstream professions. I literally never see cochlear implants when I'm out and about. I think I'd just about do backflips if I ever glimpsed one. Growing up, I never had a deaf role model - my world was full of hearing people, and I wasn't sure what to do with myself. Many of the deaf peers that I had while growing up currently struggle in school, or hate it, or gape that I can achieve grades and acknowledgements and milestones on par with my hearing peers. In such a world, it's easy for me to forget that other accomplished deaf individuals exist.
This could be cause for me to celebrate and feel smug, but it isn't. I am reminded of how much I want a world where it's simply ordinary for deaf individuals to succeed to a high standard. It's not just that I don't want to be singled out. It's that there is no real cognitive, biological reason why more people with hearing losses shouldn't have the opportunities and experiences that I have had. (Social, political, psychological, and individual trends come into effect instead - now those are the snarky ones.) Why me? Why should I have this, if others don't?
This isn't a post intended to lay out areas in which the framework of deaf life in America could improve - clearly there are many - but, rather, a bit of a meditative outburst. These outbursts happen to me every once in a while, and I think the current one is worthy food for thought. This year I'd like to grapple with such questions a bit more head-on, as well as reach out and find other deaf individuals who have succeeded in their areas of interest, and how, and why. Yeah, deafness can be a big deal - but at the same time it isn't. With the right kind of environment, it really isn't.
I applied for a job earlier this month, and got a prompt email response praising my resume as well-qualified, with the inevitable line, "Please give me a call at xxx number so we can discuss this further." Oh, jeez. This again. Obviously I hadn't mentioned the whole deaf thing from the start; it was completely irrelevant. But obviously it had to come out now. So, taking a deep breath and feeling vaguely abashed (as I always do in such situations), I fired off a reply explaining that phone calls weren't an option for me, could we meet in person or email, et cetera. The answer I got: "How wonderful that you have gone this far in spite of being deaf." Uhhh. Yeah. Gah. And then a few evasive lines about being uncertain of whether I could manage the job because of my phone incompatability and challenges in receiving verbal feedback. Well, so much for that.
This is just one recent instance (and a pretty mild example, at that) of several things that I keep running up against. The necessity of labeling myself as deaf - which I am, yes, on one hand - even while I feel like I've morphed into some strange organism with head jumbled full of noise. Deaf, but not entirely. And not hearing either. The question of what I will be able to accomplish or do at any time in the future, and the uncertainty that accompanies such a state of flux. The assumptions that hearing people make, that everyone has the same mainstream abilities. The way I myself make these assumptions, that other people can see or run or jump or be athletic or learn quickly or eat an unhindered diet. (This bothers me. I hate assumptions, and hate that I should make them. But, in the end, aren't they necessary for collective groups to function?) Finally, the resentment that a deaf individual with my level of proficiency (in academic accomplishment, in verbal skills, in whatever) should be considered "exceptional." The perception that deafness is some sort of terrible barrier against high achievement.
Don't get me wrong, deafness can be a terrible barrier. No one knows that better than I do. But what most frequently makes it terrible, in essence, isn't the competence of the deaf individual in question - it's simply that the way the mainstream world works is incompatible with what that individual needs to thrive. Language. Accessibility. Early intervention. Visual media. Understanding. A social and therapeutic safety net. That this ideal environment doesn't exist isn't anyone's fault, not entirely. It's a problem that I don't quite know the answer to, but it bothers me constantly. Deaf people (contrary to the old moniker) aren't dumb. But I look around and don't see any of them at Stanford. I doubt there are very many at Harvard, Princeton, or Yale, either. I see very few of them in high-functioning, mainstream professions. I literally never see cochlear implants when I'm out and about. I think I'd just about do backflips if I ever glimpsed one. Growing up, I never had a deaf role model - my world was full of hearing people, and I wasn't sure what to do with myself. Many of the deaf peers that I had while growing up currently struggle in school, or hate it, or gape that I can achieve grades and acknowledgements and milestones on par with my hearing peers. In such a world, it's easy for me to forget that other accomplished deaf individuals exist.
This could be cause for me to celebrate and feel smug, but it isn't. I am reminded of how much I want a world where it's simply ordinary for deaf individuals to succeed to a high standard. It's not just that I don't want to be singled out. It's that there is no real cognitive, biological reason why more people with hearing losses shouldn't have the opportunities and experiences that I have had. (Social, political, psychological, and individual trends come into effect instead - now those are the snarky ones.) Why me? Why should I have this, if others don't?
This isn't a post intended to lay out areas in which the framework of deaf life in America could improve - clearly there are many - but, rather, a bit of a meditative outburst. These outbursts happen to me every once in a while, and I think the current one is worthy food for thought. This year I'd like to grapple with such questions a bit more head-on, as well as reach out and find other deaf individuals who have succeeded in their areas of interest, and how, and why. Yeah, deafness can be a big deal - but at the same time it isn't. With the right kind of environment, it really isn't.
Thursday, January 13, 2011
To the Mattresses
As I think was apparent in my last post, this is where the real work begins - or continues! My time after returning from a quarter abroad was largely a time for me to regroup, to literally and figuratively catch my breath, and I did little structured listening outside of a few covered-mouth conversations. Leading up to my remapping two weeks ago (which, in a nutshell, readjusted the electrode input and gave me a new program with a noise-reduction filter, which has been amazing for loud/distracting/overwhelming places like restaurants - I find that I can make out individual voices from among the hubbub!), I was content to let things glide along for a bit.
But now that I've returned to the structure of classes and the college lifestyle, I'm a bit more motivated to pick up the listening-exercises pace again. This is especially true after jumping back into an environment in which I'm surrounded by hearing people who: 1) unthinkingly assume that my abilities will be up to "normal-person" par, 2) ask me how the hearing is going (a natural question to ask, since I haven't seen them for so long) and therefore make me want to stay in practice, or 3) seem to have no idea how much my life has changed in the last six months, making me feel simultaneously dismayed and gleeful. Yes, a complicated mix, but that's the way things go.
So, I'm dogged again. The audiobooks are back. Appointments with an auditory therapist are upcoming. In class I challenge myself to listen, really listen, to the professor and predict what he/she says before the interpreter signs it. (Amusingly, this has brought up several instances where I notice that the interp has misstepped or paraphrased. Score!) Phone conversations - after literally a three-month hiatus - are working their way into my daily schedule.
These conversations have been the hardest part. They're not "conversations," per se, in that when my parents call we're not talking normally about anything. Rather, they're structured listening exercises, often accompanied by computer instant messages out of necessity. The usefulness of technology. Talking on the phone is way harder than talking in person, mainly because the range of frequencies inherent to human speech is literally compressed over the connection. Hence, speech doesn't sound like what I'm used to. It doesn't sound as dynamic and lifelike. People tend to sound far away, whispery or muffled, or just plain strange. Complicating the problem is the fact that I have absolutely no real previous phone experience with hearing aids to fall back on. I'm using the phone for the first time in my life. And sitting in a room by myself with a receiver pressed to my ear, straining to decipher the disembodied voice from the other end, is a real whoa! moment. It feels unnatural, I almost don't believe that I can do it, I start to panic, and the vicious cycle begins.
But, as with everything else, I've found that practice is key. Three days this week I've gone to the mattresses with the phone. The first time (also my first time since September, mind you) I was a wee bit too ambitious, and ended up feeling shaken, to say the least. Tonight I was actually smiling, picking up on impromptu bits and sometimes finding myself able to automatically reply. A bit like doing headstands at times, but the confidence that practice brings is astonishing.
Now, what happens when I do this every day? I can't wait!
But now that I've returned to the structure of classes and the college lifestyle, I'm a bit more motivated to pick up the listening-exercises pace again. This is especially true after jumping back into an environment in which I'm surrounded by hearing people who: 1) unthinkingly assume that my abilities will be up to "normal-person" par, 2) ask me how the hearing is going (a natural question to ask, since I haven't seen them for so long) and therefore make me want to stay in practice, or 3) seem to have no idea how much my life has changed in the last six months, making me feel simultaneously dismayed and gleeful. Yes, a complicated mix, but that's the way things go.
So, I'm dogged again. The audiobooks are back. Appointments with an auditory therapist are upcoming. In class I challenge myself to listen, really listen, to the professor and predict what he/she says before the interpreter signs it. (Amusingly, this has brought up several instances where I notice that the interp has misstepped or paraphrased. Score!) Phone conversations - after literally a three-month hiatus - are working their way into my daily schedule.
These conversations have been the hardest part. They're not "conversations," per se, in that when my parents call we're not talking normally about anything. Rather, they're structured listening exercises, often accompanied by computer instant messages out of necessity. The usefulness of technology. Talking on the phone is way harder than talking in person, mainly because the range of frequencies inherent to human speech is literally compressed over the connection. Hence, speech doesn't sound like what I'm used to. It doesn't sound as dynamic and lifelike. People tend to sound far away, whispery or muffled, or just plain strange. Complicating the problem is the fact that I have absolutely no real previous phone experience with hearing aids to fall back on. I'm using the phone for the first time in my life. And sitting in a room by myself with a receiver pressed to my ear, straining to decipher the disembodied voice from the other end, is a real whoa! moment. It feels unnatural, I almost don't believe that I can do it, I start to panic, and the vicious cycle begins.
But, as with everything else, I've found that practice is key. Three days this week I've gone to the mattresses with the phone. The first time (also my first time since September, mind you) I was a wee bit too ambitious, and ended up feeling shaken, to say the least. Tonight I was actually smiling, picking up on impromptu bits and sometimes finding myself able to automatically reply. A bit like doing headstands at times, but the confidence that practice brings is astonishing.
Now, what happens when I do this every day? I can't wait!
Monday, December 27, 2010
Input: Invalid
As of today, I've almost reached the six-month mark since I got my CI turned on (minus two days). I have my six-month remapping appointment later this week, and I'm excited to see what progress I've made and what the sound quality is like afterwards - especially since it's already so good.
But six months? Wow. My experience of the world has been transformed since those days in late June. My hearing aid sounds downright depressing now, and the dynamism of the CI is like being continually seduced. Let's face it: I'm addicted to sound. And whenever I'm feeling discouraged or just plain short-circuited (like when life starts sounding too chaotic - i.e., almost every day), I need only look back to that time to appreciate how far I've come. Six months: a heartbeat, and yet an immeasurably long stretch. It's impossible to compare my perceptions then to my perceptions now. My horizons have broadened, my sense of the possible has exploded. Yet, these days, I get the sense that I'm approaching a new threshold.
Let me expand: my brain, in its absorption and data-gathering over roughly 26 weeks, has reached the point where it can observe and interpret sound considerably well for where I started out. Except that relying on auditory information is not its natural instinct. Noise has never made sense to it before now, and so its innate tendency is to rely, as it always has, on sight. Since I've gotten home from being abroad, I've discovered that, when my parents or other family members intentionally speak to me from where I cannot lipread, I can understand them. I can do it! How astonishing. But this is only after much repetition, only after I forcibly shift gears and coerce that long-deafened brain of mine to listen. It can do it, it just believes that it can't - and, when lipreading is the faintest shadow of an option, it automatically seems to tune out noise and choose to watch instead. My mind is like a computer: in its long history of programming, sound input has been an invalid command. Now that the CI makes listening possible, the hardest part is going to be convincing my brain to trust what it hears, to actually use those long-neglected pathways.
So, I'm teetering on the brink of using my ears and not my eyes, and this process has been ridiculously difficult because it requires a literal reprogramming of my experience. But yet, the sensation of having a conversation (however predictable and simplified) and actually hearing and understanding has been... mind-boggling. In all senses of the word. I have to repeat what I've heard to myself as if to prove that it was real, that it sprang into being from a mind not my own, that it makes grammatical sense. It's happening! I just need to teach that brain of mine to believe in sound as clear, accessible, trustworthy - as much as sight. The ground is not going to crumble beneath its feet. This is an unprecedented challenge, and after twenty years it is is bound to be difficult - but here's to having arrived at the point of subtle mind games, rather than being-hit-over-the-head-by-a-blunt-object ones!
But six months? Wow. My experience of the world has been transformed since those days in late June. My hearing aid sounds downright depressing now, and the dynamism of the CI is like being continually seduced. Let's face it: I'm addicted to sound. And whenever I'm feeling discouraged or just plain short-circuited (like when life starts sounding too chaotic - i.e., almost every day), I need only look back to that time to appreciate how far I've come. Six months: a heartbeat, and yet an immeasurably long stretch. It's impossible to compare my perceptions then to my perceptions now. My horizons have broadened, my sense of the possible has exploded. Yet, these days, I get the sense that I'm approaching a new threshold.
Let me expand: my brain, in its absorption and data-gathering over roughly 26 weeks, has reached the point where it can observe and interpret sound considerably well for where I started out. Except that relying on auditory information is not its natural instinct. Noise has never made sense to it before now, and so its innate tendency is to rely, as it always has, on sight. Since I've gotten home from being abroad, I've discovered that, when my parents or other family members intentionally speak to me from where I cannot lipread, I can understand them. I can do it! How astonishing. But this is only after much repetition, only after I forcibly shift gears and coerce that long-deafened brain of mine to listen. It can do it, it just believes that it can't - and, when lipreading is the faintest shadow of an option, it automatically seems to tune out noise and choose to watch instead. My mind is like a computer: in its long history of programming, sound input has been an invalid command. Now that the CI makes listening possible, the hardest part is going to be convincing my brain to trust what it hears, to actually use those long-neglected pathways.
So, I'm teetering on the brink of using my ears and not my eyes, and this process has been ridiculously difficult because it requires a literal reprogramming of my experience. But yet, the sensation of having a conversation (however predictable and simplified) and actually hearing and understanding has been... mind-boggling. In all senses of the word. I have to repeat what I've heard to myself as if to prove that it was real, that it sprang into being from a mind not my own, that it makes grammatical sense. It's happening! I just need to teach that brain of mine to believe in sound as clear, accessible, trustworthy - as much as sight. The ground is not going to crumble beneath its feet. This is an unprecedented challenge, and after twenty years it is is bound to be difficult - but here's to having arrived at the point of subtle mind games, rather than being-hit-over-the-head-by-a-blunt-object ones!
Monday, December 20, 2010
ASL, Revisited
As I think I've written on this blog before, one of my biggest qualms about getting the CI was that it would represent a literal rejection of myself, a capitulation to the idea that I wasn't good enough to lead my life just as I was. In making my decision, I felt like I was casting aside the "deaf" part of my identity, which hurt regardless of the struggles associated with it. Six months later, however, I find that certain aspects of that identity will always endure, irrespective of whether or not I can hear. Sign language, especially, lingers with me in gratifying and unexpected ways.
I don't know how to classify my attitude about ASL before the CI. It had always somehow seemed like a crutch, a reminder of my inability to communicate like everyone else. I grew up with virtually no other deaf people in my life, and in my awkward preteen and adolescent years using my hands to converse only emphasized how different I felt from the world around me. Now, even though I am still far from an auditory communicator, I'm a skilled enough lipreader (and, increasingly, my CI is a helpful enough tool) that I've been able to distance myself considerably from ASL. When I am not in class, days pass in which I see no sign, in which I get along reasonably well (if not perfectly) in one-on-one interactions without it. As my hearing progresses, I find myself feeling more and more linked to the hearing world.
And yet, I am not. Not entirely. This has less to do with the fact that I will likely always need interpreters or other communicative assistance for some situations (and might as well accept it), and more to do with the fact that sign is wired into who I am. Now that I've experimented with other options, and come to see ASL as a bit more of a personal choice than a strict necessity, I feel freer to embrace its charm. I think in English and prefer to speak most of the time, but I cannot abandon the wonderfully deaf part of myself. Oddly enough, the CI has made this clearer than ever.
As much as I'm learning to be auditory, the truth is that I'm predominantly a visual learner. I retain information better when I see it - as with sign rather than mere lipreading. When I introduce myself to strangers, I find myself tempted to fingerspell and then give my sign name, and have them do so in return. Ditto for when other people do not understand what I say; surely I will make myself clear if I only spell it out? My hands writhe and itch by my side. A few times, absurdly, I've started to fingerspell to strangers before I've checked myself. (For the record, I've come to think that everyone should be able to fingerspell at the very least. It would make life infinitely easier.) When I am across a noisy room from a friend, I impulsively want to wave, to sign; shouting feels ridiculous, pointless, and tires me out besides. Sound notwithstanding, I cannot divorce myself from these inclinations.
When I settle down with my writing, sometimes I cannot think of the word that I want, at least not in English; however, I often find that I can sign its exact concept, its exact nuance. I lean back at my desk making sweeping gestures into the air, willing the English version to come. ASL, in all honesty, was my first language, and maybe this only comes across at such moments. Sometimes, when I am alone, I converse with myself using my hands. They become extensions of my thought.
Most importantly, though, sign language is what often defines many of my closest relationships. I've come to realize that, however comfortable I feel with lipreading a person, I often do not feel completely at ease with him/her unless he/she signs. I associate lipreading with strain, hyper-attention to detail, and continuous guesswork and exertion. Under such circumstances, it's possible to communicate well, but it's very difficult to relax. It's a subconscious association at times, but often the people with whom I feel most myself are the ones who sign, giving me confidence and dispelling my tension. Speech can make me feel trapped, painfully aware that I am at a disadvantage compared to my hearing peers, and confined in my ability to make friends only with the people I can lipread well. (Moving forward, I'm interested to see how the CI influences this.) But ASL is like a comfort food or a favorite book by the fire: in its presence, I can exhale and unwind.
Communication, clarity, security: regardless of whether I can hear or not, I've come to realize that I have the sort of fondness for ASL that stems from its being a part of my identity. It's hard to explain this to some hearing people, who, upon asking "Can you lipread?" and receiving my affirmative "Yes," ask no further questions about my communicative means and do not seem to wonder after my visual, secret self. For indeed ASL belongs to the most private part of me; perhaps this is part of why I avoided displaying it more publicly at a younger age. Or perhaps it was because sign language was too often questioned, too often stared at, too often made fun of or used as the brunt of crude jokes. Too often in my childhood, other kids would mock me with empty hand gestures and made-up signs. Even now, I find that my peers too often display interest in only the "obscene," "amusing," or "random" signs that add entertainment value to their lives, rather than true communicative meaning. (This is true for any language, I think.) If I have been reserved about sign, perhaps it is partly because I've gotten tired of this horseplay.
As I grow older and become a more skilled communicator in a variety of ways, and as I discover new horizons with the CI, I realize all of this more articulately. My identity with ASL is a quieter, more self-contained sort than that waved about by the strictly nonverbal, Deaf crowd, but it suits me well. Even if I woke up to hear perfectly one day, I don't think I could ever shun sign language completely. And that's reassuring.
Finally, one of my friends passed along this link not too long ago:
http://www.nytimes.com/2010/12/08/education/08language.html?_r=2&ref=us
Even though I admittedly sometimes dream of nothing more than reducing my dependence on ASL and interpreters (again, there's something tricky about it being a choice), reading this article was sweet and satisfying. If more people are learning sign language, if more people are considering a perspective, communicative means, and experience of the world so different from their own, then all the better. I used to be one to scoff at hearing people's naive and overly romanticized notions of ASL being "breathtaking" and "like hands dancing," but in the end, there's no language like it.
I don't know how to classify my attitude about ASL before the CI. It had always somehow seemed like a crutch, a reminder of my inability to communicate like everyone else. I grew up with virtually no other deaf people in my life, and in my awkward preteen and adolescent years using my hands to converse only emphasized how different I felt from the world around me. Now, even though I am still far from an auditory communicator, I'm a skilled enough lipreader (and, increasingly, my CI is a helpful enough tool) that I've been able to distance myself considerably from ASL. When I am not in class, days pass in which I see no sign, in which I get along reasonably well (if not perfectly) in one-on-one interactions without it. As my hearing progresses, I find myself feeling more and more linked to the hearing world.
And yet, I am not. Not entirely. This has less to do with the fact that I will likely always need interpreters or other communicative assistance for some situations (and might as well accept it), and more to do with the fact that sign is wired into who I am. Now that I've experimented with other options, and come to see ASL as a bit more of a personal choice than a strict necessity, I feel freer to embrace its charm. I think in English and prefer to speak most of the time, but I cannot abandon the wonderfully deaf part of myself. Oddly enough, the CI has made this clearer than ever.
As much as I'm learning to be auditory, the truth is that I'm predominantly a visual learner. I retain information better when I see it - as with sign rather than mere lipreading. When I introduce myself to strangers, I find myself tempted to fingerspell and then give my sign name, and have them do so in return. Ditto for when other people do not understand what I say; surely I will make myself clear if I only spell it out? My hands writhe and itch by my side. A few times, absurdly, I've started to fingerspell to strangers before I've checked myself. (For the record, I've come to think that everyone should be able to fingerspell at the very least. It would make life infinitely easier.) When I am across a noisy room from a friend, I impulsively want to wave, to sign; shouting feels ridiculous, pointless, and tires me out besides. Sound notwithstanding, I cannot divorce myself from these inclinations.
When I settle down with my writing, sometimes I cannot think of the word that I want, at least not in English; however, I often find that I can sign its exact concept, its exact nuance. I lean back at my desk making sweeping gestures into the air, willing the English version to come. ASL, in all honesty, was my first language, and maybe this only comes across at such moments. Sometimes, when I am alone, I converse with myself using my hands. They become extensions of my thought.
Most importantly, though, sign language is what often defines many of my closest relationships. I've come to realize that, however comfortable I feel with lipreading a person, I often do not feel completely at ease with him/her unless he/she signs. I associate lipreading with strain, hyper-attention to detail, and continuous guesswork and exertion. Under such circumstances, it's possible to communicate well, but it's very difficult to relax. It's a subconscious association at times, but often the people with whom I feel most myself are the ones who sign, giving me confidence and dispelling my tension. Speech can make me feel trapped, painfully aware that I am at a disadvantage compared to my hearing peers, and confined in my ability to make friends only with the people I can lipread well. (Moving forward, I'm interested to see how the CI influences this.) But ASL is like a comfort food or a favorite book by the fire: in its presence, I can exhale and unwind.
Communication, clarity, security: regardless of whether I can hear or not, I've come to realize that I have the sort of fondness for ASL that stems from its being a part of my identity. It's hard to explain this to some hearing people, who, upon asking "Can you lipread?" and receiving my affirmative "Yes," ask no further questions about my communicative means and do not seem to wonder after my visual, secret self. For indeed ASL belongs to the most private part of me; perhaps this is part of why I avoided displaying it more publicly at a younger age. Or perhaps it was because sign language was too often questioned, too often stared at, too often made fun of or used as the brunt of crude jokes. Too often in my childhood, other kids would mock me with empty hand gestures and made-up signs. Even now, I find that my peers too often display interest in only the "obscene," "amusing," or "random" signs that add entertainment value to their lives, rather than true communicative meaning. (This is true for any language, I think.) If I have been reserved about sign, perhaps it is partly because I've gotten tired of this horseplay.
As I grow older and become a more skilled communicator in a variety of ways, and as I discover new horizons with the CI, I realize all of this more articulately. My identity with ASL is a quieter, more self-contained sort than that waved about by the strictly nonverbal, Deaf crowd, but it suits me well. Even if I woke up to hear perfectly one day, I don't think I could ever shun sign language completely. And that's reassuring.
Finally, one of my friends passed along this link not too long ago:
http://www.nytimes.com/2010/12/08/education/08language.html?_r=2&ref=us
Even though I admittedly sometimes dream of nothing more than reducing my dependence on ASL and interpreters (again, there's something tricky about it being a choice), reading this article was sweet and satisfying. If more people are learning sign language, if more people are considering a perspective, communicative means, and experience of the world so different from their own, then all the better. I used to be one to scoff at hearing people's naive and overly romanticized notions of ASL being "breathtaking" and "like hands dancing," but in the end, there's no language like it.
Monday, December 13, 2010
Same Place, Same Sound - Or Is It?
Coming back to familiar places, you always notice that they do not feel quite the same. The reason, in most cases, is you: you've been away, you've changed, and you're returning with a different perspective. This has been true for me in many ways since coming back from three months in Europe - but perhaps the most striking difference about home is that it sounds different. It sounds better! Having a baseline to compare to, I'm reminded of just how much my hearing is progressing.
Take airports, for instance. From my many travels back and forth to California over the summer, I've come to associate airports and airplanes with tune-ups in hearing. At first, they almost made me physically ill. That first flight back from California, almost six months ago, is something I shudder to think about. A great shapeless blob of sound hovered over my head, roaring and pulsating, so that reading - concentrating - thinking - became impossible. But now, the thrum of activity, and even of the engine, is just there, keeping me company. Now I can hear the different sounds in that large roaring cacophony, from when the engine gears up to when the wheels screech as they land to the various footsteps and announcements and voices in the airport. Loud and clashing, yes, but more subtly so.
The same is true for my house: not only are its noises more tolerable, but they are more complex. The new whirs and clicks and noises I'm noticing have me confused, and I have to go through the whole process of racing around figuring out what they are. I'm hearing more noises from farther away, and I've found that when I'm sitting in one room I sometimes know exactly what's going on in another, just by listening. How strange and amazing. It feels almost like ESP. This is not the same house that I knew three months ago.
My first day home, I sat down at our piano and struck a note: middle C. It rang forth, smooth and so beautiful that I literally gasped. Same house, same piano, and three months later it sounds so wonderfully pure and resonant, so different from the almost mechanical notes I heard over the summer. My brain is starting to interpret music as, well - music.
In the yard, the chickens roam about, clucking and crowing. I recognize their noises instantly as chicken sounds. But here, too, something is different. I'm hearing them from way, way across the yard, and they sound more richly layered, more complex, more - I don't know - chickeny. I'm noticing more different tones and subtleties in their clucking, almost as if I can interpret their moods. Too bad this doesn't stop them from being annoying. I'm still apt to shout, "Shut up!" when one rooster gets his tailfeathers into too much of a wad.
Who knew one place could feel so different, so much richer, based on the quality of sound I find there? My ear is working on finer and finer auditory skills, and the amount of texture that gives the world is astounding. It's starting to be a little more than just "noise." Now I've just got to listen to some of the specific songs I heard over the summer, return to some of the same listening exercises, go to more familiar (but yet changed) places, and see where all that puts me!
Take airports, for instance. From my many travels back and forth to California over the summer, I've come to associate airports and airplanes with tune-ups in hearing. At first, they almost made me physically ill. That first flight back from California, almost six months ago, is something I shudder to think about. A great shapeless blob of sound hovered over my head, roaring and pulsating, so that reading - concentrating - thinking - became impossible. But now, the thrum of activity, and even of the engine, is just there, keeping me company. Now I can hear the different sounds in that large roaring cacophony, from when the engine gears up to when the wheels screech as they land to the various footsteps and announcements and voices in the airport. Loud and clashing, yes, but more subtly so.
The same is true for my house: not only are its noises more tolerable, but they are more complex. The new whirs and clicks and noises I'm noticing have me confused, and I have to go through the whole process of racing around figuring out what they are. I'm hearing more noises from farther away, and I've found that when I'm sitting in one room I sometimes know exactly what's going on in another, just by listening. How strange and amazing. It feels almost like ESP. This is not the same house that I knew three months ago.
My first day home, I sat down at our piano and struck a note: middle C. It rang forth, smooth and so beautiful that I literally gasped. Same house, same piano, and three months later it sounds so wonderfully pure and resonant, so different from the almost mechanical notes I heard over the summer. My brain is starting to interpret music as, well - music.
In the yard, the chickens roam about, clucking and crowing. I recognize their noises instantly as chicken sounds. But here, too, something is different. I'm hearing them from way, way across the yard, and they sound more richly layered, more complex, more - I don't know - chickeny. I'm noticing more different tones and subtleties in their clucking, almost as if I can interpret their moods. Too bad this doesn't stop them from being annoying. I'm still apt to shout, "Shut up!" when one rooster gets his tailfeathers into too much of a wad.
Who knew one place could feel so different, so much richer, based on the quality of sound I find there? My ear is working on finer and finer auditory skills, and the amount of texture that gives the world is astounding. It's starting to be a little more than just "noise." Now I've just got to listen to some of the specific songs I heard over the summer, return to some of the same listening exercises, go to more familiar (but yet changed) places, and see where all that puts me!
Monday, December 6, 2010
Public Service Announcement Number One
Our minds really fool us into accepting an illusion of mediocrity. It works something like this. You pull yourself along step by step, tied inextricably to the present, feeling that all of this is too slow. Things aren't changing, not really. You've put in the hours, but your efforts seem to whisk off with the next strong wind. What you're building is as of yet a fragile thing - resilient, yes, but so delicate that you wonder if it'll ever be of use. You want to give it room to grow, but at the same time you keep questioning where its limits lie. You are too used to the limits you've always known, and in your heart you wage a battle between idealism and habitual resignation.
Yet the boundaries do expand, invisibly. Time and again you discover that your brain has been working all along, beneath your notice, and that you're acquiring skills you never anticipated. Time and again your newfound knowledge strikes, and you experience a single moment that shocks you with its revelation, its clarity, as life roars back and exposes the vista on which you stand.
This happened to me again today - a tiny gem that a hearing person would hardly have noticed, but that for me was a startling breakthrough amidst a scenery that had come to feel mundane. It was on the bus to London. I had been staring out over the clouds and city, lost in thought, still ten minutes from my destination. The bus shuddered to a stop to let some people off, and at that moment, I heard the driver say over the intercom, "Shepherd's Bush."
Wait, what - Shepherd's Bush? The words had come out of nowhere, but flashed into my mind as clearly as if I had read them. I looked out the window at the bus stop. There, on the side of the road, were those very same words printed on a sign. Shepherd's Bush was the name of the stop. Inside my heart stumbled, then pushed itself back up in disbelief. I hadn't anticipated or even concentrated on the driver's announcement, but I had heard it, and the sensation of hearing was as wonderful as a soft light diffusing through my mind. The noise hadn't been awful or distracting or meaningless; I had actually understood. It was the first intercom announcement that has ever meant anything to me. Hypothetically I knew that disembodied voice must be saying something, but that impersonal rationalization cannot compare with experiencing it personally.
Over the next series of stops I sat tense, quivering, trying to connect the harsh sound with some external meaning. And, yes, I could connect the very moment that it said, "Notting Hill" or "Marble Arch," though those times the sound was blurred by the engine. I felt as if a veil had been briefly drawn back, allowing me to glimpse the objects casting shadows on the other side of it. Flutter closed that veil might, but the more times I part it the more heartened I feel. Understanding: I can't describe how superbly sweet it is.
And here I've been climbing mountains, even while I've believed myself to be trudging over level fields...
Yet the boundaries do expand, invisibly. Time and again you discover that your brain has been working all along, beneath your notice, and that you're acquiring skills you never anticipated. Time and again your newfound knowledge strikes, and you experience a single moment that shocks you with its revelation, its clarity, as life roars back and exposes the vista on which you stand.
This happened to me again today - a tiny gem that a hearing person would hardly have noticed, but that for me was a startling breakthrough amidst a scenery that had come to feel mundane. It was on the bus to London. I had been staring out over the clouds and city, lost in thought, still ten minutes from my destination. The bus shuddered to a stop to let some people off, and at that moment, I heard the driver say over the intercom, "Shepherd's Bush."
Wait, what - Shepherd's Bush? The words had come out of nowhere, but flashed into my mind as clearly as if I had read them. I looked out the window at the bus stop. There, on the side of the road, were those very same words printed on a sign. Shepherd's Bush was the name of the stop. Inside my heart stumbled, then pushed itself back up in disbelief. I hadn't anticipated or even concentrated on the driver's announcement, but I had heard it, and the sensation of hearing was as wonderful as a soft light diffusing through my mind. The noise hadn't been awful or distracting or meaningless; I had actually understood. It was the first intercom announcement that has ever meant anything to me. Hypothetically I knew that disembodied voice must be saying something, but that impersonal rationalization cannot compare with experiencing it personally.
Over the next series of stops I sat tense, quivering, trying to connect the harsh sound with some external meaning. And, yes, I could connect the very moment that it said, "Notting Hill" or "Marble Arch," though those times the sound was blurred by the engine. I felt as if a veil had been briefly drawn back, allowing me to glimpse the objects casting shadows on the other side of it. Flutter closed that veil might, but the more times I part it the more heartened I feel. Understanding: I can't describe how superbly sweet it is.
And here I've been climbing mountains, even while I've believed myself to be trudging over level fields...
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